#58942 10-16-2006 09:00 AM | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2006 Posts: 294 | My last of 33 rad treatment was 12 July this year with last of 4 chemo rounds the week prior. I began losing taste after about second week into rad treatment. I am now just over 3 months out and can tell of no noticeable change. My RO told me that on average it takes 2 to 10 months for buds to return. It gets quite depressing but I juat keep hoping taste will return soon. I am still down 25 pounds from my 180 when dx back in April. I seem to snack very little now as few snack foods taste good, especially sweets. I am also still very sensitive to spicy foods and am wondering if I will ever be able to get my weekly Mexican fix again!
Bill D
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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#58943 10-16-2006 12:07 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | If gaining weight is your goal, try substituting Carnation VHC with 560 cals per 8 ozs. See my earlier post titled "Great Product".
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#58944 10-16-2006 01:32 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Bill D,
Taste buds can take awhile to get back to normal, but don't give up hope. Since I had conventional radiation (rather than IMRT), it took me quite some time, but I got back to the point of enjoying Mexican food and certain kinds of spicy Asian foods again. Also, the taste for sweets definitely came back -- I have to ration my desserts to keep from putting on weight.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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