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#5832 07-24-2005 03:17 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | SJT,
I am really sorry to hear of the difficulties you have been facing. You are a very special person to be by your family through such a rough journey. I wish you very best.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#5833 07-27-2005 01:48 PM | Joined: Jun 2005 Posts: 20 Member | | OP Member
Joined: Jun 2005 Posts: 20 | Thank you all so much for all your kind words and prayers. I am back home now in PA taking a break from the last two weeks. I have been driving my dad back and forth for his treatment. He is starting to really not feel well. He just had his chemo port put in on tuesday. He got very sick on the way home. He also had radiation right after surgery. I will go back down soon to drive again. They got a few more people to help with the driving so I can take a break. I miss my kids. Anyway, thank you all so much again.
Sara
Second care giver for my dad who has SCC stage 4, diagnosed 5/18/05, met to epiglottis, base of tounge, throat and lymph nodes bi laterally. IMRT 5 days a week and sisplatin every other week for 6 1/2 weeks started July 20, 2005
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