#5789 07-18-2005 07:11 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi all,
Has anyone else had lymphoedema on their face? My cheek and up to my eye are still swollen, after trying anti-biotics, anti-histamines, CT scan (which showed "non-enlarged cervical nodes"). I haven't contacted a massage person as yet.
From what I have been researching on the net, this is not that common.
Cheers!
Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | | 
#5790 07-19-2005 04:25 AM | Joined: Jan 2003 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2003 Posts: 109 | I had my treatment in Sep.2002 - Oct 2002, the Lymphoedema lwasted until late 2004. So it took me 2 yrs to get away the lymphoedema
WZ | Stage 4, Tonsillar Cancer Aug, 2002
| | |
#5791 07-19-2005 05:21 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hey Tizz, I am 3 years out now and my left side of face still has swelling. I have been treated,(with facial massage) but it seems to be only temporary help to the situation. Sorry I cannot be of more help to you. Carol p.s. I also had lazer done every 8 weeks for about a year. It helped with the redness and a little with the puffiness.
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#5792 07-19-2005 05:56 PM | Joined: Apr 2005 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 60 | My husband has had Lyphmphoedema and still has........but it has improved alot with lymphatic massage, take a peek at the posts on this link near the bootom, I was given some good advice for him. http://www.oralcancerfoundation.org/ubb/ultimatebb.php?/ubb/get_topic/f/2/t/000458/p/1.html#000013 Hope you feel better soon Sammie and Rich
C/G to Husband Richard SCC Op 4/1/2005 T2N0M0,Neck disection, 35% of tongue removed.
Reoccurance 3/2007,Lymph Node same side Positive SCC, Swelled to 2.5 inches. IMRT X35 Cis X3 Completed 33 IMRT Cis x2 carbo X1 MET to lungs post treatment 10/04/2007
Passed peacefully 31st July 2008.
| | |
#5793 07-19-2005 08:35 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi all,
Please excuse my ignorance, (as I have had to find my own way around this cancer crap, since diagnosis...many many thanks to the OCF members, and "aussie h"!), what exactly is the laser treatment Carol?
"WZ": Oh no, don't depress me....joking of course! This swelling turned up after 14 months since the end of radio, that's why I was puzzled. My Onc/surgeon thought I may have sinusitus, and suggested I have a CT scan....I'm still a little concerned myself about the "non-enlarged cervical nodes", but what the heck, I'm still here!
Thanks Sammie for pointing back to those previous posts. After my radical neck dissection in December 2004, I had lypmhoedema next to my neck scars...a sort of huge bulbous blimpy thing! That went away, but this one on my face turned up in May this year. My Onc/surgeon was going to give me a contact through the hospital, but being the type of guy he is (very busy, well respected), I haven't heard from him. Our Cancer Council here in Sydney has given me some contacts, and I will see someone soon...when I can find space in between work (being self-employed, time is not always your own), visiting "my friend (!)" the dentist, etc.
Cheers and thanks!
Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | |
#5794 07-20-2005 04:49 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Tizz, I had the lazer treatment with a dermatologist with almost a year. He zapped me (I wore goggles) on the left side of my face, it felt like bee stings. It helped a bit, plus I had rosacea. Maybe google it as I have a hard time explaining things. Thanks and God Bless!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#5795 07-20-2005 04:56 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hey Tizz, I would like to add one more comment, I was in a department store today and the sales clerk asked "Did you just come from the dentist"?, I asked her why she asked me that, I was polite. She said "You have marks on you". I told her I had cancer, etc. and she was very taken aback and sorry, .....So I guess the lazer didn't work any miracles on me!!! SMILE!!!! If you don't have anything nice to say, DON'T say anything at all!!!!!I try to live by those words!
Have a great day Tizz! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#5796 07-20-2005 01:51 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 |  ...I won't say anymore...  Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | |
#5797 07-24-2005 03:52 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Tizz,
Laser treatment is used to promote healing. Many physical therapists in the U.S. use it and based on different light intensities, it is used to increase blood flow, reduce inflamation, etc. It used primarily to reduce pain.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | |
#5798 07-25-2005 03:50 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hey Ed, It's good to see you back Cheers! Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | |
| Forums23 Topics18,267 Posts197,181 Members13,364 | | Most Online1,788
Jan 23rd, 2025 | | |
|
