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#56495 06-04-2005 03:08 AM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2004 Posts: 153 | Unfortunetly David cannot talk, due to the surgery removing his tongue. That seems to have been the hardest thing for his little girl, loosing that communication with him. He can write to her, though, and I have wanted to suggest he write things for her to read in the future, but I know that will be one of the hardest things he has ever done, and I just haven't been able to mention it yet. I will try to find the strength to do that.
Tonya
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#56496 06-04-2005 05:44 AM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Tonya, does he have the strength to use a keyboard?
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#56497 06-04-2005 02:42 PM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2004 Posts: 153 | Yes, he can use a keyboard and he even has a keyboard that will verbally say what you type - he just hasn't adjusted to it yet and seems uninterested in it since the latest diagnosis. Hospice is trying to regulate his pain which is enabling him to do more. His best friend from childhood came to visit today and took him to a ranch where they spend many summers hunting and fishing. They stayed out there for six hours. (This was amazing since he hasn't been able to get around much lately) I am so happy. This really seems to have lifted David's spirit and I bet he will have no trouble sleeping tonight. This was a good day for all of us.
Tonya
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#56498 06-05-2005 02:33 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear Tonya,
So nice to hear David was able to get out for 6 hours with his best friend. Sounds like a man I would like to know.
Hoping Hospice can get his pain under control.
He is lucky to have you as one of his caregivers. Your love for him shines through your postings.
Love Ya, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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