#55848 11-18-2004 11:49 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Now c'mon Gary...don't keep us in suspense...  You may have stumbled on something we can all use but you have to give us the technique first. As far as taste, I still go through some interesting changes from day to day and chocolate still tastes a little strange but I still eat it. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#55849 11-19-2004 03:43 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Ed,
Me too. Chocolate still doesnt really taste that good, sour. But I still managed to neck down an enormous amount of my kids Halloween candy. And let me tell ya, when you have 4 active trick or treaters, you score big on the candy. Real big.
Have a great weekend everybody.
Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#55850 11-19-2004 06:26 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Guys, what is it with the chocolate taste? It still doesn't taste right to me either, oh, well, I am still gonna keep trying it!! SMILE!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#55851 11-19-2004 07:04 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Carol L,
It does take awhile, but eventually I found the taste for chocolate returned completely. In fact, all this talk about it is going to send me into the dining room to raid the leftover Halloween candy basket -- right now.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#55852 11-19-2004 11:07 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Yet another use for duct tape....
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#55853 11-20-2004 05:50 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thanks Cathy, I tried a butterfinger, one of my all time fav candy bars and it tasted pretty darn good!!! SMILE!!I am only afraid to eat too many cuz of my deteriorating teeth situation! But hey, once in a while is fine!!!Satisfies the urge, Take Care and God Bless!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#55854 03-15-2005 05:09 PM | Joined: Mar 2005 Posts: 2 Member | | Member
Joined: Mar 2005 Posts: 2 | deteriorating teeth as well due to radiation treatments in May of 2003 and xerostomia...........I can't stand the taste of soda pop yet......any idea if I'll ever get the great taste again? | | |
#55855 03-15-2005 06:19 PM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2005 Posts: 663 | This is a post I could never share with Harry. It was very funny and I always need the laughter but you must understand that this was one of his biggest hangups about the treatments.
He said that if we didn't really have a marriage when this was done then what was the point?
I cannot tell him that his sex drive will be stumped for a while and maybe longer. He would give up now.
This is one of those guy things I think I will never understand. It is not that important to me but he makes a big deal out of it.
By the way... where did the popcicle stick instructions go? :-)
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#55856 03-16-2005 07:27 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Terry, you sure know how to get everyone's attention. Hey - wouldn't that be a GREAT book title!?! Meanwhile, between Mark's post to Ed in another forum, and this, my company DEFINITELY knows I'm not working right now.
And you people are all freaking me out - everytime I start wondering "is it just me", one of these posts come up and answers my questions.
I was lucky with my taste buds, that came back quick. I lost it around this time last year (between eating issues from surgery and then radiation), when the Cadberry Cream Eggs were out. I LOVE those babies, and was so sad that I couldn't eat them. I had one for the first time this year, and was pretty close to tears. Had to pull over to finish it. The people in the store were looking out going "What the hell is that woman doing to that egg??" Yeah. You think I'm joking. LOL.
As for the other....I am 9 months out of treatment (1 year since diagnosis), going <tap, tap, tap> "Is this thing on???" I'm not sure "sex drive" is in my dictionary anymore. Right now I'm looking at men going "huh. Not doing it for me." I'm looking at women going "Well, treatment didn't send me that way either" and then wondering "Okay. Now what?" Glad to hear it'll be back. I'll have to stick to eating the eggs for now.
Sabrina | | |
#55857 03-16-2005 08:30 AM | Joined: Nov 2004 Posts: 90 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2004 Posts: 90 | Gary I just have to say...you are so funny! Now I had always heard that as long as you have duct tape and bungee cords....you can fix anything...I will have to add popsickle sticks to that list! Before my husband Ron had radiation, they were doing lazer treatments on his throat to remove the pre-cancerous cells. They would knock him out to do the procedure, and one time the anesthesiologist (sp) asked Ron what kind of pain meds he had been taking (mind you they had given him something to relax him so he was kind of loopy)...he responded Viagra...(but he meant Vicodine). I explained to the Doctor what he meant to say, but you should have seen the look on that doctors face, it was priceless. We still laugh about it.
Shelley
Caregiver to husband, Ron. Throat cancer, Stage II. No Chemo or Surgery. Completed 35 Radiation Treatments in November 2004.
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