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#55746 11-04-2004 09:28 AM
Joined: Feb 2004
Posts: 218
Gold Member (200+ posts)
Gold Member (200+ posts)

Joined: Feb 2004
Posts: 218
Hi,
I recently visited with my oncologist and one of my questions for him was whether there was much risk involved in getting a CT scan every 3 months.

He said that there is significant risk in terms of longevity down the road and that I should have a scan at 3 months post radiation, 6 months, then once a year thereafter. He also said that scans are particularly useful for following oral cancer sufferers who's neck tissue has become thick, ("woody" was the word he used) and thus difficult for a doctor to palpitate accurately. Describing my neck as pretty pliable, he thought seeing my ENT surgeon every six weeks for a physical examination with occasional CT scans was a less risky strategy and one that would be just as effective monitoring me.

So, my question is how often are you getting a scan that involves radiation to look for recurrences post-treatment? Does the frequency of the scans change from year to year post-treatment? Has your doctor talked about the risks associated with CT scans in particular? Thanks, Sheldon


Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
#55747 11-04-2004 10:02 AM
Joined: Jul 2003
Posts: 382
Likes: 3
Platinum Member (300+ posts)
Platinum Member (300+ posts)

Joined: Jul 2003
Posts: 382
Likes: 3
Hi Sheldon!
Bummer, no one mentioned risks with CT scans. I have had one every 6 months post radiation and chest xray every year. No one has mentioned changing the schedule. I see the ENT every 6 months and radiation doc every 6 months, scheduled so someone sees me every 3 months. They said this would continue until year 5. Oncologist doesnt even want to see me, said he was too busy with sick people!! That was about as far in the future as we got! - Kris


SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
#55748 11-04-2004 12:25 PM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Why CT? MRI's are better for soft tissue and pose no risk. UCSFCCC requires them on an annual basis along with a chest x-ray. CT's kick out the highest x-ray dose of any scanning modality.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#55749 11-04-2004 01:08 PM
Joined: Nov 2002
Posts: 458
Platinum Member (300+ posts)
Platinum Member (300+ posts)

Joined: Nov 2002
Posts: 458
Gary, my GP raised the same question about the CT, suggested that since I've had radiation twice that maybe CT wasn't the best way to go, exept for the PET part. He suggested PET/MRI, which I"ve never heard of and doubt exists, although if they could make it work would be great I think.

Bob


SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
#55750 11-04-2004 02:33 PM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Actually there is fusion software that will allow them to meld PET and a CT or MRI images but I don't believe that there is an actual PET/MRI machine yet.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#55751 11-05-2004 08:26 AM
Joined: Feb 2004
Posts: 372
"Above & Beyond" Member (300+ posts)
"Above & Beyond" Member (300+ posts)

Joined: Feb 2004
Posts: 372
Dan has had a few PET/CTs before and after chemo/rad. He goes to his Rad Oncologist every month, his oral surgeon every two months and has a PET/CT every two to three months.


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
#55752 11-07-2004 03:35 AM
Joined: Mar 2004
Posts: 417
"Above & Beyond" Member (300+ posts)
"Above & Beyond" Member (300+ posts)

Joined: Mar 2004
Posts: 417
Good question, it has not occured to me that there might be a danger...


Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
#55753 11-07-2004 06:20 AM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
There is always a danger when energy is introduced into the body. This is why the FDA, which started as the BRH, Bureau of Radiological Health, takes a very serious interest in this subject. And this extends not only to x-rays but also microwave ovens, TV's, computer monitors, even ultrasound, etc.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)

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