#55446 09-08-2004 02:22 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Hi Everyone, While I was driving to Maine about 8 weeks ago, I non-stop ate a candy called Hersey's Hugs. I'm not the best long distance driver in the world and always need something to keep me alert, this was my choice for this trip. I don't chew these candies, I suck on them until they melt. At the end of the trip I noticed that under my tongue and along the side of it were sore, the side where I had my jaw surgery and have no bottom teeth. Under my tongue I noticed what looked like a cut or a split and it was red. I can't really call it a sore. I went to the doctor about three weeks after this cut came about, he wasn't concerned with it. It's very small, is smaller in the morning. It's as if during the night when I am sleeping and my tongue is still it trys to heal, then I open it up again during the day. It's as if it's trying to granulate and heal from the inside out. Am I making any sense here, it's hard to describe it. Has anyone ever had anything like this?? Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#55447 09-08-2004 04:38 AM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2002 Posts: 458 | Minnie these day's it seems I've always got some sore spot or another going. Usually I manage to either burn my tongue on some sort of stir fried something or another or bite it some how and don't remember the exact time I did it.
I'm not familiar with Hershey's hugs, but the cut could possibly even be from something else even. The tongue is a muscle basically, and from what my ENT says can take a little longer to heal if there's a deep cut for the very reason you're describing. It's still at night, but during the day you move it around and stretch out the tissues and open up the wound again.
I'd keep an eye on it, as you know conventional wisdom is if it doesn't heal in 10 days to see the doc, but it sounds like you've already done that. So, I guess the next move is try not to move it around too much for a week. (How ever you do that I don't know)
Hope it gets better soon Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#55448 09-08-2004 05:53 AM | Joined: Oct 2003 Posts: 89 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Oct 2003 Posts: 89 | Hi Minnie, first off thanks for your info about the jaw and bone graft! here are some of my opinions (not facts):
I've found - prior to cancer - that a lot of sugar, or salty things, would give me canker sores, or what I think of as pre-canker sores - an area that was sensitive, red and sore. (My mom says she can't drink diet sodas because the artificial sweetners give her canker sores.)
So, I think some things, in close or constant contact with the mouth tissue are irritating the area. Such as throughout a long car ride. Seems to make some sense. Add onto that with cancer and its various treatments the mouth area is, as Bob/jetage hobo says always prone to something!
I'd try rinsing with water more often to try to get food particles, etc away. Also one of my doctors likes to recommend plain old salt water as a general way to cleanse the mouth and keep off bacteria.
Maybe its thrush or fungus. I had/have the start of cold sores at the corners of my mouth and have used a nystatin creme. The creme might not work inside your mouth but during radiation I had a nystatin rinse to help more sores. And prior to cancer (but during pre-cancer leukoplakia stage) my ENT gave me carafate for canker sores that worked well. You might want to ask your doctor about those.
Others in my general cancer support group have commented about how prone their are to little things - skin abrasions, cuts, etc. that seem to cause more trouble than in the pre-cancer days. They share the feelings that these minor issues are of course nothing like the threat of cancer, but are the lingering little, frustrating aspects! And of course the constant fear of worrying whether some little symptom is a lurking cancer!
Hope it clears up soon!
History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.
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#55449 09-08-2004 05:59 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hello Minnie,
I can't offer much more advice on your sore other than what Bob has stated. I can hope you treat it with tender loving care and it's just a memory by Vegas!!!
See Ya Soon, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#55450 09-08-2004 06:37 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Dec 2003 Posts: 116 | I know from my radiation my gums and tongue that were hit are more sensative. Even when I chew meat it hurts and after 6 mos is not totally healed. So that tissue might be still sensative but as suggested keep and eye on it till its gone.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#55451 09-08-2004 07:10 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Minnie,
My tongue is still very sensitive to things that are too salty, too acidic, too abrasive, too hot...the list goes on. I also agree with the comment about needing to get food particles outof the way quickly, because they seem to cause irritations if I don't.
That being said -- it sounds as though several weeks have gone by since you saw the doctor about this, so if you're not seeing improvement, I'd suggest having him look again.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#55452 09-08-2004 07:16 AM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Jun 2004 Posts: 85 | I just finished radiation. I thought that staying away from as much sweet as possible was the idea, especially for dental care. Not a judgment call Minnie. I have been known to get my instructions convoluted at times
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04. 2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#55453 09-08-2004 07:46 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Minnie,
If I eat any candy and let it dissolve in my mouth, I have a sore that seems to last for days. I discussed it with the ENT and he said from now on to expect sores for no specific reasons to come and go. I usually rinse with salt water for a couple of days and they go away.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#55454 09-08-2004 08:52 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Thanks for the replies, as always, they help. I guess I need to put the chocolate away, darn it. I know the sugar is not good, but it felt WONDERFUL to eat something the same exact way I ate it before the radiation. The hugs taste, feel, etc., the exact same now. So, as is my personality, I went WAY overboard with it. Close to half a bag a day.......and I wonder why the scales keep creeping up............up to 134 now which is almost 10 pounds OVER my prediagnosis weight. I can feel a soreness after I eat alot of these candies. Regardless, I will have it looked at again, I go to the doctors on Sept. 28th. Love, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#55455 09-08-2004 01:41 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2002 Posts: 541 | Minnie, just to add one thing to remind you since you 'love' candies and chocolate. They will harm our teeth. I rely a lot on sugar free candies and gums during the day to make my speech clearer. They really help but at the same time damage my teeth. I have to go often to the dentist for tooth filling. I made a joke with the dental nurse that I am now working for the dentist. Dental charges aren't cheap here.
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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