#55145 07-03-2004 02:35 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Hi Ed...well thank goodness your bone scan turned out OK...you can handle the other stuff...easy peasy.
Take care
love
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#55146 07-11-2004 05:44 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Hi Ed,
It's me scubie....In response to your question about arthritis, I do know that I went and complained I was having trouble moving my right shoulder. I had a good bone scan dome and was told it was Brusitis. Which I thought it was, but lasting a very long time. Bu tI have noticed that my elbow joints and fingers are a little painful to move. At first I thought it might have been DCS from my other dive trips, but ruled that out after looking at me profiles. Thats a good question and I'm gonna ask my oncologist.
Wondered where you got off to lately... ALan | | |
#55147 07-12-2004 09:35 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hey Alan,
I was planning on wandering over your way to see how things are going. I have been looking for work, pushing for social security and looking for work.
I notice so many aches and pains in the fingers, elbows, wrists, knees, ankles, etc. at different times and wonder if it is from the radiation or chemo. I even had the radiation folks blaming some of the neurological issues on the chemo and the medical oncologist blaming it on radiation. I don't care whose fault it is but I wish there were things to do to make some of the little things like joint pain, headaches, eye aches and stuff just go away. I guess it will probably be around for a while...if not forever.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#55148 07-12-2004 11:49 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Yep, just getting to be a drag huh? Don't you believe it!!! I have the same thing as you, Have a 54th birthday coming up, told the wife I feel like I'm going on 64 instead. She didn't like that any... take care Alan | | |
#55149 07-13-2004 07:07 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I know what you mean. I think I aged about 10-20 years but still just look too darned young, as some of you will see in Las Vegas.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#55150 07-13-2004 03:19 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Ed,
I have also noticed in the past couple of months that I have more aches and pains in my joints then I ever did before. I did not have chemo, only radiation. I notice it the most in my fingers and my shoulders.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#55151 07-19-2004 01:23 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Ed -
<in meditation stance> Huummmmm......sending you good thoughts to rid the pain.
Great news on the mets, though!! Congrats!!
Sabrina | | |
#55152 07-19-2004 04:19 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Minnie, thanks for sharing your aches and pains...  . I tend to think the little things that remind me of the past year will most likely be around for, hopefully, a very long time. Sabrina, please stand up, it makes my knees sore to see you in that stance. Thanks for the good thoughts. I feel better already. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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