#54623 03-23-2004 04:31 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | I am 8 months post op and 5 months post radiation. The one problem I have is any thing I drink will always drip out of my nose. A little embarrasing when out to eat. It hasn't gotten any better at all. I can always count on 5 to 10 drops running out my nose. Overall a minor problem but bothersome none the less. Anyone else have this problem?
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#54624 03-23-2004 06:32 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Not me Dan, I run at the mouth.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#54625 03-23-2004 07:44 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2002 Posts: 541 | Dan, I don't have such problem, either but I have read stories from two survivors in Hong Kong having such experienc after treatment to the head and neck area. They appeared on the news media mentioning their problem in drinking water. They had nose feeding tube for quite some time and when they had to eat on their own, they had your problem. They felt embarrassed when drinking something with color, like the grape juice. Like what you have described, the fluid would drip out from the nose in tiny drops. Both said they would not drink anything other than water in the public and there is no running like that if they take something thicker like cereals or congee. Dan, you are not alone but sorry I can't offer any help.
Karen stage 4 tonsil cancer diagnosed in 9/01.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#54626 03-24-2004 05:27 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | You know what they say Dan - "If your nose runs and your feet smell then you're built upside down".
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#54627 03-24-2004 09:00 AM | Joined: Oct 2003 Posts: 52 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Oct 2003 Posts: 52 | Dan, Marcy had that problem afer her radiation treatments too. I believe the radiation caused a hole in her palate or somewhere in there. She has that problem to this day. She has to have kleenex wherever she is.
God Bless, Michelle
Michelle, sister to Marcy Dx January 03, partial glossectomy/selective neck dissection T2N1MO/recurrence June 03, radiation and chemo/recurrence Dec. 03 mets to spine and base of skull//palliative care//lost her April 10th 2004 Age of 32
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#54628 03-24-2004 01:02 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2002 Posts: 458 | Hi Dan
I don't quite have the exact same problem I don't think, but when ever I start eating about a third of the way into the meal I get a terrible case of runny nose/post nasal drip. Almost like during surgery they re-routed my salivary glands to my nose for lack of a better description.
Luckily the restaurants here usually provide a small pack of tissues with dinner, I think instead of napkins. Eating spaghetti with chopsticks can get messy sometimes.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#54629 03-24-2004 04:52 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Bob, you are describing EXACTLY what happens to me! I was just to darned embarrassed about it to post it. Half way through a meal, no matter what it is I'm eating, my nose starts running ALOT. It's the most bizarre thing. No clue what it's from though. Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#54630 03-24-2004 06:15 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2002 Posts: 541 | Bob, I didn't notice this problem when we had dinner buffet last time in Hong Kong. You looked 100% normal eating a lot of food in the restaurant. Did you develop such problem recently?
Karen stage 4 tonsil cancer diagnosed in 9/01.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#54631 03-25-2004 06:50 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2002 Posts: 458 | Hi Karen...Have had the problem for quite a while. I just got real good at hiding it. Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#54632 03-26-2004 01:05 PM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2003 Posts: 153 | hi Dan,
at first nothing went down my throat.. all came out my nose..
eating therapy had me doing stuff like saying the letter 'K' to help build things that close off that passage...
much later, i got my esophagus stretched..twice.
for me both things seem to help alot.
(also doing stuff to help the epiglottis do it's thing helps... that's mainly eating, which is hard to do when the main passage is too small and another is open rather than shut.)
i got better, but still have my days. a few weeks ago, i got a raisin to come out of my nose while eating breakfast... breakfast of champions!
cheers, cu larryb | | |
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