#53585 06-19-2004 01:53 AM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Although we are in the same boat sharing the same goal of fighting cancer, we are all very different, different in our perspectives, our value judgement, our interpretation to information around, and many more. As a webmaster of such an active site with thousands of visitors, Brian has every right to censor the content of messages especially on critical or sensitive issues. Somehow I think it may cause embarrassment or even ill feelling on the poster whose message is removed after being up for a while. I am not sure if it is technically possible that censorship can be done before any web link is posted and the poster can be informed privately if the message or link has to be deleted from the forum.That can make the poster feel more comfortable and respected.Just to add my two cents' worth.
Karen.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#53586 06-19-2004 04:03 AM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | Hey Mike, I wish you would stop calling me Greg.
Glenn | | |
#53587 06-19-2004 07:04 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Jeeze I must be stupid or something Sorry GLENN
Mike
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#53588 06-19-2004 08:35 AM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | I am not going to get in the middle of this one again. I will state a couple of things for the record, and in doing so state they are my opinion which may not be shared by others. First, this site was designed to offer people with a specific disease a place to look for UNBIASED information, edited by some of the best doctors in the US on this disease. Second, the forum was established to help those who are searching for advice, support, and information, to gain it from others who speak from their own personal experiences and knowledge. To exchange a
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#53589 06-19-2004 09:24 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Brian
Well said.. as a radio ham I had to keep politics and religion out of my world wide contacts.. this is only good manners when you are not'face to face' with the other person.. respect the other person's point of view and sometimes you learn more than you thought possible.. and yes I NEED to trust this site.. it is my primary source of information..
take care and once again thanks
sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#53590 06-30-2004 03:03 PM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | The chase for bogus treatments and the removal of those who promote them continues. Please check out the latest news story at http://www.oralcancerfoundation.org/news/story.asp?newsId=177 For those of you who do not regularly check the OCF news pages, they are updated twice a week with articles that we think will be of interest to our members.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#53591 06-30-2004 07:06 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi Brian, Thanks for that link about Laetrile. I am sending it to a close friend who said I should try it, some people he knows have "cured" their cancer from the product......  Cheers! Tizz
End of Radiation - the "Ides of March" 2004 :-)
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#53592 02-04-2006 02:40 PM | Joined: Feb 2006 Posts: 8 Member | | Member
Joined: Feb 2006 Posts: 8 | If you are living in New Zealand, be reminded that there is no selenium in the soil here so it is a good idea to make sure you supplement your diet with it whether you have cancer or not. Every farmer gives it to his livestock. An important trace mineral. I reckon you cant go wrong with few mls of organic flaxseed oil on your porridge every morning, either. Tastes great, some really good fats and it might be good for helping to prevent some cancers (probably not oral, though).
kem
scc rt tonsil, T1N2A, primary excised with radical neck disection, 35 radio trtmnts, 1x cisplatin.
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#53593 02-06-2006 11:46 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | While I can't eat nuts at all since radiation, darn and I love them too, Brazil nuts are loaded with Selenium. Just three a day is supposed to supply your daily requirenment and I defy anyone who can eat nuts to stop at three. For those that can, enjoy.
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#53594 02-06-2006 03:07 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Eileen, wonder if Brazil nuts could be ground and stirred into pudding or sprinkled over icecream. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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