#53474 01-26-2005 12:14 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Helen, you got it girl, plenty of good vibes and prayers headed your way..Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#53475 01-26-2005 03:58 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Helen...I won`t be behind the door this time!
Many Many good vibes coming your way. Hope you are not freezing to death over there, we know how you love the sun.
Take Care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#53476 01-27-2005 02:41 PM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Awww Sweetie I just returned & I am sorry to see that you are facing an additional surgery.  Yours is the voice of reason, silly English humour or not, I have always appreciated your fine humour & know it will carry you through back to your Sunshine, Love & Hugs! As for me:I found out my Mom (my angel) is from Luthborough(sp?) in Leicester when telling her about you from the Forum, she sends prayers along with mine for your speedy recovery  Take care Love Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#53477 01-27-2005 06:28 PM | Joined: Oct 2003 Posts: 89 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 89 | R Kenneth,
Hi, I also had a screw loose. (titanium plate)
and speaking of finding weird humor in cancer...
I was a little disappointed that it doesn't set off the metal detectors at the airport.
we've got to have something to smile or laugh about!
History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.
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#53478 01-28-2005 08:14 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hi Helen,
Hoping it's just a minor setback. You are a special person who brings joy to all who read your posting's. I'll be thinking about you on Feb 10th. Sending good vibes across the way.
Sunshine, Love & Hugs, (no laughing)
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#53479 01-28-2005 09:56 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Helen, I just seem to be full of jokes and humor except when someone as near and dear as you needs it most  . I am sending you warm thoughts, good vibes and trying hard to think of a good joke just for you! I have a Japanese gentleman that I worked with at two major US corporations and he is now CEO for a bottled water company that extracts mineral water from deep in the ocean. He does not deal with Americans now days and he wants to keep in practice so periodically he sends me lists of jokes and asks me what they mean. I look at them and try to tell him in non-English (American version) terms why they are funny. We sometimes exchange the same one back and forth a few times until he gtes it. I will have to copy you on some of them just for kicks. I am hoping for the absolute best for you and I have been studying your current challenges so I can understand what you are going through and dealing with. Lots of love, Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#53480 01-28-2005 12:56 PM | Joined: Nov 2004 Posts: 90 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2004 Posts: 90 | Hi Helen,
I have read quite a few of your posts, and it's obvious what a special lady you are! I will be saying my prayers and wishing you good vibes on Feb. 10th too. Since humor is so important, I heard something that I thought was funny on the radio the other day. They were interviewing a 104 year old woman and they asked her what she thought was the best part of being 104....she said "no peer pressure"....
Hugs,
Shelley
Caregiver to husband, Ron. Throat cancer, Stage II. No Chemo or Surgery. Completed 35 Radiation Treatments in November 2004.
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#53481 01-28-2005 02:46 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I'll send vibes your way on the 10th and you send me some back on the 11th. I have surgery that day. Let's hope that they find a "fix" for the issues you're having.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#53482 01-28-2005 03:22 PM | Joined: Jan 2005 Posts: 94 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2005 Posts: 94 | Michelle,
Screw loose? Been there, done that. Hell... sometimes I look at a photo and wonder if I've got my head on straight.
The weird thing is that I don't see the same guy in the mirror as I do in photos. The guy in my mirror is healthy and happy, ready to take on the day. The guy in the photos is all beat up. I wonder if anybody else ever feels that way...
Ken
SCCA T2N1M0 diagnosed 11/02, radical neck dissection, 7 weeks radiation, 6 surgeries to deal with osteonecrosis, 10 weeks hyperbaric oxygen. "Live strong. Laugh often."
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#53483 01-29-2005 11:33 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi
Locally I'm known as the woman that YOU DO NOT MAKE LAUGH..
ALSO half-headless Helen, (as from Harry Potter)
and when I breath in, Darth Vadar (SP)
Great that people laugh with me, NOT at me...
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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