#52256 09-11-2007 06:05 PM | Joined: Dec 2005 Posts: 2 Member | OP  Member
Joined: Dec 2005 Posts: 2 | I'm new to this and reading the info on the bottom of people's entries, I'm trying to identify if any are melanoma patients? | | |
#52257 09-12-2007 03:00 AM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | I don't think there is a way to search the signatures (Brian, is that a field that can be added for searching in the directory?).
Go to the search link at the top of each message-board page. Use melanoma as your search term and be sure to choose Search All Open Forums to maximize results. I looked quickly and found at least one -- screen name Michael Ballon. Perhaps you could get his e-mail address from his profile (search the directory using his screen name or member number) and write him.
All the best,
Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#52258 09-12-2007 05:44 PM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | Thre has only been the one that I know of. There is no way to search signatures. It is relativley rare, and the one person that has posted here is still doing well though he has been told that his long term prognosis is not positive. Without knowing why you are looking for this in particular, I will just comment that melanoma in all areas, oral or otherwise, is very hard to cure, and has poor survival rates.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#52259 09-12-2007 07:42 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | My mother had melenoma on her left arm and they took out a chunk of flesh so large it looked like a shark bite in "Jaws" - but she survived it. It is a particuarly insidious and agressive cancer.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#52260 09-13-2007 03:52 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | I just got back from a 6 day bike ride through the San Juan Islands (Wa state) and one of the other participants had had malignant melanoma 10 years ago, and was doing great, no recurrence. So I was happy to see a good outcome for someone, as it is often not that way, as both Brian and Gary have said.
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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#52261 09-13-2007 10:04 AM | Joined: Dec 2005 Posts: 2 Member | | OP Member
Joined: Dec 2005 Posts: 2 | Thank you all for your responses. Brian, it is my brother who is fighting the huge fight. As I was reading the accounts of others, I found my self wondering just what type of cancer these unfortunate folks had, and if any of them were oral melanoma sufferers like my brother. At almost 2 years since diagnosis, he now is stage 4.  Thank you all! | | |
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