#52185 08-21-2007 09:54 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Yeah! Yesterday the rad onc saw mom's tongue, he's been on vaca for 2 wks, he was thrilled! Brachetherapy surgery set for 9/11.
Mom (Rose) gets a few days of freedom!!!
Thanks for all the love and support!!
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52186 08-21-2007 10:02 AM | Joined: Jun 2007 Posts: 26 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jun 2007 Posts: 26 | Congrats! My mom finished last Thursday. Now we just wait until it is time for the scans - which won't happen until early/mid October.
Caretaker to my best friend, my mom. Age 60 - never smoked or drank. St IVA oropharynx. 37 radiation tx, 8 carboplatin tx. Diag 5/31/07-TX completed 8/16/07-good PET 10/10/07. Passed away 3/28/08 due to weakened blood vessels from tx. Now watching over her triplet grandsons born on 5/19/08.
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#52187 08-21-2007 10:48 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Donna, That's great news for you both.
I'm sure both you AND mom will enjoy the 'rest'!
Lovely to hear good news. Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#52188 08-21-2007 01:35 PM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2007 Posts: 231 | Great news ladies. Not to be the bearer of bad news which I try so hard not to do on here for obvious reasons but the time after treatment is over can be real tough. I know it was for me. Good luck to both moms.
Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#52189 08-21-2007 11:34 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | That is good news, Donna and Amy! - hope things continue to improve. If the next few weeks post Tx are tough, tho' - which they can be for some, just knowing what to expect and that it does get better can be very encouraging. For my son, right after Tx ended were the worst for him, but just as others had said to me, when the 3rd week started, there was a definite improvement and everything got progressively better from that point on.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#52190 08-21-2007 11:58 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Congrats to Amy and her Mom!
Thanks everyone.
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52191 08-22-2007 09:44 AM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | I'm so happy for you Donnarose!! I hope that inceases you strength and faith. Great news!!
Stay the course, Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
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#52192 08-22-2007 01:11 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Absolutely!! and thank you!!
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52193 08-23-2007 01:12 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Billy- You mentioned that after treatment iit was tough-may I ask, what did you mean? The last two days have been vrey hard on mom, today especially as she cried much of the day. very depressed, I don't think she evens know s that is what is wrong with her. I hear her calling me now. If I leave for any length of time and my father isn't with her she turns into a mess. Thanks for your help. Donna
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52194 08-24-2007 04:23 AM | Joined: Jun 2007 Posts: 26 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jun 2007 Posts: 26 | Donna, Hi. I found that my mom was quite depressed for the last week - since her treatments ended. She started to come around yesterday, but that was really the first day. We have been letting her sleep as much as she wants, and hopefully next week she will be moving around a bit more. If I don't think she is better I will ask one of the many doctors we are slated to see next week for some more meds or something to help. If I had to guess I would think that it is now the fear of the unknown for my mom. It will be about 2 months before they do her scans, and as strange as this would sound, I think she at least felt like she was "working" to get better by going to treatments, and now she feels there is nothing for her to do to help the process. This, of course, is not true, because just walking up and down the street or around the house a bit more would be a huge help to getting her strenght back. My mom has become incredibly dependent and not very mobile. My sister, who also helps to care for her, does not help in this regard and lets my mom just sit around, which I know is not good. I am at a loss and just hope that she snaps out of it. She is on Zoloft as well as Atavan, which she takes regularly. Hopefully your mom will start to feel better soon. I will let you know if I hear of any "tricks" or "secrets" to help through this time.
Amy
Caretaker to my best friend, my mom. Age 60 - never smoked or drank. St IVA oropharynx. 37 radiation tx, 8 carboplatin tx. Diag 5/31/07-TX completed 8/16/07-good PET 10/10/07. Passed away 3/28/08 due to weakened blood vessels from tx. Now watching over her triplet grandsons born on 5/19/08.
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