Has anyone had a family member go thru Nasopharyngeal cancer? If so I would like to hear how they did thru treatment and what the treatments consisted of.

My pathology report pointed to the nasopharynx as the likely origin of my cancer, and I was treated accordingly, even though the primary was never discovered. It could have been microscopic, or my body could already have defeated it through the lymph system.

Treatment consisted of the modified radical neck dissection, followed by about 35 (I'd have to count them again, the number changed toward the end) IMRT sessions-7 positions each session with two 'zaps' each position.

I was also to have concurrent chemotherapy, but that was delayed for a month into radiation. I got a false positive on the original PETscan-a portion of my lung lit up. The RO said I couldn't start chemo until that had been resolved. He was sure I also had lung cancer. He was wrong. By the time I got in for a needle biopsy of the lung, the hotspot was gone-nothing to biopsy. It was some sort of inflammatory process apparently. Anyway, I had one chemo session May 1, a month into radiation. It made me so sick, I couldn't continue.

One thing about radiation to the nasopharynx. It (apparently in all cases according to my ENT) causes a thickening of the eustachian tubes which results in a 'plugged ear' or 'underwater' sensation that is very annoying. There is nothing that can be done to correct this, other than little tubes through the eardrums, which don't really help much.
Riley

Luckily things turned out better for you : )

Talk to me. With this disease, I don't know that any of us can say we've arrived at a place where things have 'turned out'. It's a lot more journey and a lot less destination. It's day-by-day and we don't know what's going to happen next.

Hello, I had nasopharyngeal cancer. I am celebratimg my 7 yr anniversary tommorrow,also I will be celebrating my 9 yr anniversary in february for acute lymphocytic leukemia. I had a very difficult time with my treatment mostly because I had 18 months of chemotherapy for my leukemia. I still managed to get the full 40 rad treatments as well as 2 or 3 cycles of cisplatin and 5 FU. Every person is different though. I hope you or whoever is going thru the treatment flies thru it with minimal complications.I frequently ask myself why i'm still here? Riley Mc is so right that this is a journey. A journey that I believe never ends. In the end I don't kmow what will happen to me. But I do know that cancer has forced me to look in the mirror and change things about myself that needed changing. I would hate to die because I've sort of like the guy I've become.I was never a big follower of positive attitude will help you beat cancer, I'm a big beleiver in a positice attituce energizes you and will improve your quality of life. If you surround yourself with people who love and care for you the the journey will surely be be a lot easier.Best Wishes
Mark