#50980 10-26-2004 10:27 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Susan, Stuff will keep happening and I know that this is hard to do, but ruining your health worrying about it will not make the problem go away. I hate waiting as much as anyone but we cannot let this disease consume our lives and spirits. You already know several of us who have survived reoccurences or in my case a completely new occurrence. Don't assume that a bad dx is a death sentence cause it ain't. His dr is watching this carefully and told him to do the same. Here's hoping it is only stuff.
While, like Rosie, I am not religious, I do send you and Ed all the good vibes and postive energy I can muster. Pull the plug on that computer at night and forget about cancer for a while. There are much more pleansnt things to do. Meanwhile, go find me that stuffed cabbage recipe you promised me in Vegas.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#50981 10-26-2004 04:36 PM | Joined: Apr 2004 Posts: 44 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2004 Posts: 44 | Oh, my gosh! I got sucked right into stinking thinking and TOTALLY forgot about the stuffed cabbage recipe!
Thank you (everyone - no exceptions) for the love and encouragement. Tomorrow is the day to verify it is nothing and if it isn't "nothing" I'm praying it's nothing much. You know it's like water torture some times. The slow drip on your strength, erroding any resistance you have. Never had any recurrence before so I guess I just better stop ANTICIPATING recurrence and get on with life. (Where did it go over the last year and a half?)
Only good juju for tomorrow! I'm pulling the plug for tonight.
Hugs to all!
Susan
Caregiver to Uptown/Ed, SCC Stage IV, Base of tongue - Completed Chemo (Cisplatnin/5FU) and 45 days' simultaneous Radiation 10/08/03
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#50982 10-26-2004 06:00 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2016 Posts: 284 | Ed & Susan,
I will be saying many extra prayers for you tommorrow.....
Love & Huge Hugs,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04 surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#50983 10-27-2004 02:27 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Aug 2004 Posts: 217 | Susan! I pray that tangled knot of discomfort lurking inside you is untwisted today. It is such a burden to carry discontent, and you can't consider yourself a wimp.
I'll be waiting along with everyone else to hear good news after your appointment.
Love, Nicki
Nicki, wife of Thomas dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#50984 10-27-2004 03:05 PM | Joined: Apr 2004 Posts: 44 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2004 Posts: 44 | Scrippity doooooo! I was all a bunch of pooooh!
I didn't go with Ed (and it was killing me, but he didn't ask so I didn't offer until he was walking out the door). I don't know the doctor's exact words but what I heard when Ed called with an update was (this is what I could hear Dr. Sinard saying), "You're not the only guy showing up here freaking out over lumps and things. Come any time you feel like something's not right... Oh, wait a second! I've got an idea! Let me feel around your neck and tell you what I feel then you feel around and tell/show me what you feel. Don't get too worried until I get worried. You're too soon out of the PET for multiple nodes to appear out of nowhere without SOMETHING appearing on the scan. Your body is doing things it never had to do because it never had radiation, chemo before and your body is having so many changes - hang in there - you're doing fine, see you in 7 weeks if you don't freak out before then." Maybe Ed heard something a little more coherent.
Thank you everyone! Like Ed said before he rang off, "I guess I'll just go to work then." (and he's having a second interview for a serious opportunity tomorrow - first time in a mega long time (4 yrs) that we/he may be close to having "normal" in our house.) Pray, pray, pray. Good juju! Only good juju!
I love you guys!
Susan (with a Groucho nose so no one will recognize it's really me being so goofy)
Caregiver to Uptown/Ed, SCC Stage IV, Base of tongue - Completed Chemo (Cisplatnin/5FU) and 45 days' simultaneous Radiation 10/08/03
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#50985 10-27-2004 11:23 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Yeh Way to Go Girl...Enjoy your day.. Relax.. chillout.. Stay in the Sunshine... love and big hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#50986 10-28-2004 01:52 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Hi Susan, I get all kinds of lumps on my lower neck but they're always knotted muscles, which is very common for people on a computer a lot. Stress and tension don't help either - but the enlarged lymph node scare resurfaces from time to time as a result of it. I wish my doctor had a device where you could feel the difference between a knotted muscle and a lymph node.
By the way "juju" is based on voodoo and witchcraft -I am not sure that you want to summon the "powers of darkness" for Ed's condition. :p
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#50987 10-28-2004 05:01 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2002 Posts: 458 | Susan, glad to hear that things turned out ok. I don't recall ever going into the doc's, or a scan where I didn't think I had multiple recurrances. One time I counted 7 possiblilties. Of course the scan came back clean.
I wish my wive could have made it to the Vegas get together and could have met all the other caregivers so she could know that others feel the same way she does sometimes about this experience. Maybe next year.
So now time to enjoy and look toward the future.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#50988 10-29-2004 06:34 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Susan, Glad it turned out to be nothing, but it is always good to have any abnormality checked out. I make Charlie go with me to all my appointments. Seems the only time he doesn't go, my 'stuff' turns out to be bad news or the dr finds something suspicicous. He's my good luck charm.
Now go hug that loveable Ed and the two of you go out and celebrate.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#50989 10-29-2004 06:36 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2003 Posts: 382 Likes: 3 | Susan!
Such good news to hear!! A toast to you both this morning and a collective sigh of relief!! Have Ed check out Amgen here in the Seattle area. Here they are hiring. Love - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02 Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation Every day is still a gift :-)
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