#50315 06-10-2007 01:04 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Amy, great job on getting your story out and getting donations for OCF....I hope you are doing well....God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#50316 06-10-2007 03:27 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | | OP Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | I have a letter in the works that I plan to send out to everyone I have ever met, give or take. I also have all the the checks that I received from other members of the OCF. I really believe that I can raise a nice amout of money for the OCF. I intend on getting this letter out by the end of this week so it goes hand in hand with the article. And by mid-July, I hope to be able to send Brian some money.
And Jerry, if you don't know what tater tot hotdish is, you are missing out. Personally, I would take a steak over most any meal, every night of the week. Unfortunately, we are living on more of a hamburger budget over here. But tater tot hotdish is yummy. If you want the recipe, just say the word.
God Bless,
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#50317 06-10-2007 04:29 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Well I dont know what the tater tot hot dish is ..but if ya wanna share that would vbe great !! I am always looking for new things with 5 kids ,ahhaahha
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#50318 06-12-2007 05:37 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | | OP Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | Hi.
I just thought that I would share a neat thing to come out of this article. I got an email from a woman that live about 10 minutes from me. She is my age and has 4 small children. She was diagnosed tongue cancer last August, and received treatment at Mayo, just as I did. They believe that her cancer went undiagnosed for six years and by the time it was finally discovered was stage 4 and had spread to her lymph nodes. She has given me her phone number and I plan to call her very soon. She also knows another woman, in nearly the same situation that is located about 20 minutes from us.
The part that kind of gives me chills is that she hadn't received this paper for the last 9-10 months. She had just been telling her neighbor that she missed receiving it. And then the first paper she finally received was the one with this story. She believes that she was meant to see this, and so do I.
God Bless,
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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