#50269 05-16-2007 03:46 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | I feel fortunate to have been part of an article in the Hamilton (Ohio) Journal News yesterday. The article featured three cancer survivors, a four year old neuroblastoma survivor, a 34 year old Cervical cancer survivor, and myself. It was actually promoting a local Relay for Life event this coming weekend and the need for R&D, private donations, and awareness. The article was a great opportunity and I feel I made some good points for early detection and awareness, however they edited out a few key comments as well as my "plug" for the OCF website which was disappointing. I have already started getting some questions regarding the article and hopefully will get some more exposure for our cause at the event this weekend. I was surprised when I read the article as I actually got the last three paragraphs. I had been told up front the editor would probably trim my comments to a couple of lines but they kept some key comments. The last line of the entire article was my comment about "making one suggestion, visit your dentist often and make sure they screen for cancer."
Whatever we can do helps!!
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#50270 05-16-2007 05:10 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Here's the article -- registration is required, but it's painless. Good for you, Steve! -- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#50271 05-16-2007 05:51 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Great Job Steve!
I know firsthand that you have no control about what they print! The message was clear. Thank You!
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#50272 05-17-2007 12:27 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Steve,
That's great that you got some of your comments in. Working with the media can be very frustrating, but many members have had a great deal of success lately.
Every little bit helps. You are so right.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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