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Yeaterday I testified before the Florida House in support of the Gardasil Vaccine Bill.

Some background...

The bill was originally written to require that all girls entering the 6th grade beginning 2009-2010 would have to have the series of shots before they started school.

The Committee appointed to hear the Bill is composed of 10 Republicans (R) and 5 Democrats (D).

The R's objected and got the sponsor to change the Bill to include an OPT OUT clause that meant the if, FOR ANY REASON, the parent did not want their child to get the shot, they would just have to sign a form stating just that and no shots would be given.

I flew to Tallahassee yesterday with the Sponsor, Rep Homan, and he informed me that he had been called the previous night by the Chairman of the Committee (a R) and that the R's were going to put an Amendment on the agenda that would eliminate the Vaccine shots altogether and beginning in 2009 require that the schools send a note home to the parents informing them of the availability of the vaccine and the HPV connection to Cervical cancer. The parents would not be required to even sign that they got the note.

I was informed that we would now be speaking against the Amendment first and then to the Bill second.

Rep Homan had lined up the following speakers in support of the Bill without the proposed Amendment in order of our appearence:
1. A GYN of 30 years and the past President of the State's GYN Society.

2. The Communicable Disease Director of the Fl Dept Of Health.

3. Me

4. A housewife who has tested positive for HPV-16.

5. A 17 yr old highschool female, and

6. A spokesperson from the Am Cancer Society.

Pretty impressive group, especially the #3 guy.

I really can't go into all that was said but the information from the 2 doctors was undisputable. Mine was emotional as was the housewife with 2 teenage daughters and the 17 year old student was blunt, frank and unbelievable.

It was sooooo obvious from the first speaker that the R's minds were already made up. You wouldn't have believed the STUPID and I really mean STUPID questions repeatedly asked of the "experts". For instance..."Can you guarantee that this Vaccine is 100% effective?" or "Can you guarantee that this Vaccine will kill 100% of Cervical cancers?"

After we all finished speaking, the R's did not have ANY speakers lined up at all so NOT ONE fact was challenged.

The Chairman quickly asked for a VOICE vote on the Amendment and even though it sounded even, he quickly declared that the Amendment passed and offically it was recored as 10 for, 5 against.

The Bill, as amended was next voted on and it passed 15 to 0.

Result....Assuming the Senate passes it, Florida will now only require that starting in 2009 the school will hand the student (I assume females only)a pamplet or something that the student is supposed to give to the parent that will talk about the Vaccine and the HPV connection to cervical cancer.

I am so mad I can't see straight as they say. I can't believe as a R myself that they are supposed to represent me.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Hey David.
Thank You for Trying!.
You should have requested a hand vote. 15 people, come on, how long could it take.
I am a democrat, but this Congress and the Senate needs to come together as ONE VOICE, and that should be OUR VOICE.
They are on teams against each other, instead of working together for WHAT IS RIGHT...
Our Constitutions first three words are
WE THE PEOPLE!!!!
It does not say We the Democrats, or We the Republicans.
Now I'm getting MAD.
I am a religious person. But the Far Right Religous groups is who you can hang that vote on! PERIOD! They carry a lot of clout.(AND VOTES)
I have nothing bad to say about the far right religious except sometimes they are short sighted, They are trying to get morals back in our Great Country.
I don't know if your keeping up on current evens, BUT OUR COUNTRY IS GOING TO HELL IN A HAND BASKET!

OK, ENOUGH IS ENOUGH! No Politics, No Religion.

Lets keep it on OUR WAR against cancer.

I gotta go check my Blood Pressure.
PeteyB


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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David,

I can certainly understand how frustrated you must be. You have done a wonderful thing by testifying and it is a shame that the result was the way it was. It doesn't surprise me and unfortunately, this scenario will probably repeat itself in many areas.

With the outcry that occurred with the announcement of the vaccine, it is just what I expected. It's a shame that political philosophies have to enter into something as important as cancer prevention.

Please don't let this discourage you from continuing on with your activism. I give you a tremendous amount of credit for what you did and I'm sure that everyone here is proud of you.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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David,

A similar bill was talked about in the current Legislative session here in GA. There was a lot of uproar against the bill as another step of the government taking the place of the parent's decision making. The bill had no chance here.

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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Since I doubt that very many of you have an opportunity [or interest] to read the Baby Center. com website - [a hugh childbirth and parenting website and publisher of at least 2 major magazines for new parents] I have read it off and on for 3 yrs. since the birth of my 1st granddaughter. The HPV vaccine has been a matter of great debate on that web site-the debate has had Nothing to do with Democrat or Republican politics- but with #1.A parents' right to choose for their child what is best. #2. The fear of the unknown and not being able to get enough informed information about the vaccine. #3. That this vaccine might lead to more sexual promiscuity. Because this is the younger generation talking, I have watched this dabate with interest over the last 18 months. I have encouraged my DIL [who is an RN] to get my granddaughter vaccinated- that reamains to be seen] but I do believe that to think of this as a "party politics" thing is wrong. Don't know how many of you are old enough to remember when the polio vaccine came out- but I was a child and there was polio in our town [my 1st and 2nd cousins were both stricken- one lived her whole life on crutches, the other was in an iron lung for 3 yrs and then died] and there was a RAGING debate about whether or not to vaccinate the children-[ my parents had my brother and me vaccinated] Don't lose sight that there is a very vocal group of parents right now that think childhood Autism and ADS are the result of many of the innoculations that are being given infants and toddlers. These medical explorations and advances should be beyond politics.This journey to protect our kids and grandkids reaches far higher plateau. Amy in the Oz


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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This is less about Republicans and Democrats as it is about the R's desire to pander to the conservative religious right base that brought them many votes. This is not about sex it's about cancer. But the arguments about it making sex seem safe (stupid) are at the forefront of the argument. We vaccinate our kids against hep b, which is sexually transmitted; the vaccine had the same FDA approval process first. No objection, no talk of it leading to early engagement in sex, nothing. We vaccinate our kids against tetanus, do they want to to go out afterwards and step on nails? Of course not. If a parent thinks that the risk of their kids engaging in sex is more important than that child developing cancer later in life, this is a sad comment on things. This is the first real progress we have made against cancer, and the discussion is largely about parent's rights and sex everywhere. I have sat across from parents that are arguing for their rights, and they don't even have the real information about the vaccine to draw conclusions from in their mental information packs. That tells me that their right's issue is not the real issue to them. If I were to be against something I woud want to be really well versed on it before I got into a debate. As to Jam's reason number two, the info is out there in telephone book thick reams of studies and more if anyone wants to take the time to understand it. But again they do not. They are against it without full knowledge, and it isn't because the knowledge is missing. That has not been my experience in the debates I have engaged in.

Where would we be if people took this path with the polio vaccine


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Brian, You are writing from an educated position that is far and above the reach of most of the general population of young parents AND of most politicians. What I posted above is a synoposis of obvservation of what these young mothers are discussing on the Baby Center web site.[ it has nothing to do with MY understanding of the importance of this vaccine] The point of my post was to share here that we have a long way to go to educate younger generations, as you are striving so hard to do- and this education should be outside the realm of politics. [ I'll admit to being really sick of politics] I don't agree with your last couple of sentances because I have read what these young mothers are debating and it doesn't seem to me to be as much about sex as it is about the fear of subjecting their children to the "unknown". We've got the experience of what can happen- they do not have that yet. Our generation [which is a normal progression] needs to comfort and confront their fears, lead them forward, and push the Federal govenment at the same time. I have talked personally to the Mothers of my grandchild's age and they are worried about this vaccine- it has nothing to do with sex or pol;itics- their worry has to do with lack of info or guideance from their trusted pediatriction. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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JAM - you know that I respect your opinions, and I never meant to insinuate that you were uniformed. But I would just like to offer this observation. If parents wish to protect their children from all things that they cannot control, they will have to keep them locked in their homes full time. The world is not a safe place and you cannot guarantee that bad things will not happen to you when you walk out into it.

The relative unknowns/risks related to this vaccine are far less than most things that children are exposed to these days, and I do not just mean medicines etc. As to the Federal Government (at least in its current incarnation) they SHOULD be afraid of it. It does not have the American population in a proportionate level of concern compared to big business, and more. I fear we are a distant second or third in their priority lists. If mothers are afraid of the guidance of their pediatricians, they need a new one, just like we say about dentists that do not offer screenings. The information and courses for these doctors about this vaccine have been around long enough for them to get up to speed, even off the Internet in CE courses there. Today parents are too protective. Jeeze, think what it was like decades ago...Oh my God, I drank out of the garden hose, ate a bug or two out of the yard, and some handfuls of dirt as well, and that doesn't even count the things I wouldn


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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To All,

Fact-This vaccine was/is the most tested vaccine in US history.

Fact-this vaccine has been approved and endorsed by the FDA.

Fact-The FDA has followed 25,000 females who were given 75,000 shots of the vaccine for 5 years without one, as in ONE, complication except local irritations such as redness, swelling, muscle discomfort at the shot site similar to many vaccine shots.

Fact- Over 2,000,000 doses of this vaccine have already been administered over the last 2 years privately without ONE major reaction as explained above.

Fact- From the time Jonas Salk discovered the polio vaccine until the time it was MANDATED only 2 years had passed.

Fact- Each year millions of flu vaccines are administered WITHOUT ANY testing. Each year the flu vaccine is quickly produced based upon what flu strain the experts THINK will affect the US and within 6 months time it is developed and mass produced.

Fact- Unlike most, if not all vaccines, the HPV vaccine is produced synthetically and does not contain live or dead virus cells. Our body produces natural antibodies that are present when the actual virus invades the bodies and are then killed.

Fact- The vaccine was produced to kill HPV strains 6 and 11 which cause 90% of genital warts and 16 and 18 which are Class One Carcinogens that are known to cause 70% of all cervical cancers and 60% of all Oral Pharyngeal cancer. It also causes causes cancers of the Larynx, Anus and Penis and Oral Cavity.

Fact- The vaccine has been proven 100% EFFECTIVE in protecting the female body against those 4 strains.

Fact- In the US alone there are already over 20 million people infected by HPV and 6.2 million people are additionally infected each and every year by HPV.

Fact- HPV is the most common sexually transmitted vitus in the US.

Fact- By age 50 at 80% of women will have acquired the HPV virus in their life. This is known because their bodies have produced the antibodies. The CDC estimates that 80% of the entire US population will have HPV at some point in their lives. How many will have the oncogenic forms is unknown.

Fact- This year 11,000 new cases of cervical cancer will be Dx in the US and 3700 will die.

Fact- Over 9000 new cases of HPV related cancers in AMERICAN MEN each year.

Fact- The HPV virus may lie dormant for DECADES before cellular changes are seen, when as we know it may be too late to deal with.

Fact- This Florida Bill would have required insurance companies to cover the shots and also would have come under the FREE SHOTS PROGRAM for those without insurance. ( Do ya suppose the insurance lobby spent a bunch of money to defeat this????)

Fact- No one argued financial aspects of the Bill.

Fact- The current incident rate of cervical cancer in Florida is 26% higher than the US average.

Fact- The Bill allowed an OPT IN - OPT OUT feature that simply required the parent to sign a form stating they did not want their child to get the vaccine. Parental rights were not usurped. This would have at least focused their attention and required a positive response either way.

Fact- In 1997 Florida MANDATED that school children receive the Hepatitis B vaccine which is also a STD without any fanfare or opposition.

Please ask yourself how could ANYONE object to the passage of this or similar bills.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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David and Brian,
Don't be discouraged. Changes will happen in baby steps, one person at a time, who will tell one person who will tell one person. Just like the Gardisil commercial before it was taken off the air.
Sure, its frustrating to create a mere ripple in a endless ocean. But, without you, that ripple would never have a chance to build to the waves of information needed for our society to change.

You are both remarkable human beings and I thank you for all you have done.

Ginny


Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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