#49775 03-31-2005 12:43 PM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) |  Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 |
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
| | |
#49776 04-01-2005 12:19 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Congratulations Minnie and your team of organisers. What you are doing is so positive. I would absolutely LOVE to be there and meet you all but instead will send best wishes and love for a successful day. Helen 
RHTonsil SCC Stage IV tx completed May 03
| | |
#49777 04-01-2005 04:40 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Thank you Brian & Minnie for giving us a chance to help give something back to the Oral Cancer Foundation. It's a fist step in educating people and getting the word out. "EARLY DETECTION SAVES LIVES"
Brian, Me thinks like Rosie, You are to modest!!!
I know I've said it before but I for one am humbled by your committment to the Foundation.
See you next week, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
| | |
#49778 04-06-2005 05:08 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Friends,
Well I didn't want to tell you this on a general post but my home computer is so slow I have no other option. Charlie and I have suffered 4 feet of water in our house from the flood on the Delaware. There is no way we are getting on a plane tomorrow and it is extremely doubtful that I can make this at all. Can't get anyone to clean basement that doesn't want to rip the entire finished basement. Gonna hafta do it ourselves.
Will try to post tomorrow and apologize to all who I had hoped to meet. Three days of flood and more rain tomorrow. This really s..ks. and I'm pooped. If I can find a contracter and there is a seat on Friday, I may come down myself but I don't hold much hope for this.
Bushed,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
#49779 04-06-2005 09:26 PM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Oh, Eileen! How miserable for you! I knew you got hit hard with the rain that soaked us for a few days! I'm so sorry you are flooded. Wish we could all get up there to help you bail out!
I'm so disappointed in not being able to meet you, but I'm sure there will be other opportunities. And if you ever find your way to the fair Commonwealth of Virginia, give me a shout.....
Hope you are successful in finding a good and honest contractor!
Love
Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
| | |
#49780 04-07-2005 08:35 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Eileen,
I'm sorry to hear you can't come to VA and even sorrier to hear about the 4' of water in your house.
My grandmother's house was flooded in '79 when Hurricance Agnes came through. Her basement was covered and she had 2' feet in her first floor. It was an awful mess. With 4', you have a lot of work in front of you. We will miss you, but understand that you are needed at home.
Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | |
#49781 04-07-2005 10:03 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Eileen
So sorry that you look likely to miss the walk, and wish I lived nearer so I could help, 4ft of water sounds pretty devistating to me, have a glass of red wine, girl. If it makes you feel better I've just got the bill for my cell phone during my holiday from hell, for the last 2 weeks it was
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
#49782 04-07-2005 01:26 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Guys,
I am simply not going to make this. Still have no clean up crew so Charlie and I are doing this on our own. Hope to have one tomorrow. Airline wanted $885 to chnage my ticket, I don't think so for a $165 airfare, much less times 2.
Anyway, since I can't be there, I am planning on doing a 'walk in spirit' at the same time you guys are walking in Va. And I think everyone one who can't make it should do the same.
Minnie- can you give us a time when you members will be hitting the track for your survivor lap?
If so please post it, and I think we will all world wide walk with you.
I am going to post this on the general board also, so please update in both places.
Raise a bundle,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
#49783 04-07-2005 03:31 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hello Everyone,
I met Danny and Marcy Bogan today. Within minutes I was so comfortable and at ease with these two people. They have that special quality of making you feel like you have known each other forever. From the moment I read Danny's first post on the board I knew he was special and would have a huge impact on my life. Thank you Danny and Marcy.
Eileen, I am sad to hear about what happened with the house and we will miss seeing you here. I will have Captain Danny of the OCF team gather all of us at 1pm to do our lap. I hope all of you will be thinking of us at that time.
Thinking about everyone,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | |
#49784 04-08-2005 02:03 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Minnie, Thanks for having the survivor lap at 1:00, I should be there by then!! SMILE!! Love, Carol
p.s. I cannot wait to meet Captain Danny and Marcy. Eileen, I am sorry about your house, oh my gosh, I know how I felt when our basement alone flooded (many, many times) what a mess! Wish I lived closer to help you out!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
| Forums23 Topics18,246 Posts197,130 Members13,317 | | Most Online1,788
Jan 23rd, 2025 | | |
|
