#49765 03-28-2005 05:27 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Eileen,
I'm not real familiar with the drive from where you are so can't help you with directions. I use mapquest when I travel and it works out great. The park is at 500 Greenbrier Parkway, Chesapeake Virginia.
We will be meeting at the Golden Corral on Friday night and more on that will be posted after I talk to Danny again. This rest. is a buffet style place that will be casual and have food for all of us.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#49766 03-28-2005 05:28 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Eileen,
I just saw that you need directions to the park from the beach. I can give you those when we meet on Friday. The motels are also great about providing directions.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#49767 03-29-2005 04:09 PM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Hi, Everyone! I'm so excited about the walk! And even more excited about the response Tom and I are receiving from friends who supported us during this awful year! Tom wasn't sure how far he could walk, but when a dear friend pledged $25/mi, he said he'd be SURE to do the whole ten miles!  I'll be baking more pies and quiches for my co-workers, too! Some of them give me $30 as a donation - -- - mmmmmgood! Love you all, Nicki PS Tom had a 'quick' check up with the surgeon today. Uneventful and all positive feedback. After sadly reading about Smitty, I am very nervous about waiting until June for a scan. How long is customary before a follow-up scan is done?
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#49768 03-29-2005 06:24 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Nicki,
I'm excited about meeting everyone also.
You know, I have yet to have a PET scan and I have only had one CAT scan since my treatment ended July 10th, 2003. I did have a chest xray in April 2004 but since then that's it. Sometimes I read the boards and am kind of thankful I don't have the PET and other scans every few months as it would make me a nervous wreck!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#49769 03-30-2005 06:58 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Minnie,
I looked up Golden Corral and there are 3 in Virginia Beach alone. Be sure to give us the town and the address when you post the info. Us 'out of towners' need lots more info to get around.
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#49770 03-30-2005 08:37 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Eileen,
We will meet at the Golden Corral on Kempsville road on Friday night at 7pm. The motels here are very used to giving directions, in fact will most likely have directions there for any place you want to go. This is a tourist area and everyone needs directions. You will get better directions from them, believe me. I give landmark directions, as my husband calls them, and they only work if you live here and know the landmarks. I'm no good with the "interstate" directions!
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#49771 03-30-2005 04:12 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Last chance to donate to a wonderful cause!!! If anyone can afford to send in a donation to the Oral Cancer Foundation in honer of Minnie Ashworth please do. She has planned and organized the first "Walk for Awareness" on April 9th in Virginia Beach. Any amount sent in helps keep this wonderful site up and running. You can use your credit card to do this and it is a very secure transaction. This site has helped more people that we can count. We hope to raise enough money to make a difference!!! Small groups of dedicated people can move mountins. Thanks to all who have donated. Love to All, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#49772 03-30-2005 04:52 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | If any of you donate, donate it in ALL of our names. This walk is for ALL of us and is a tribute to our collective strength.
My hope is that future walks will be twice the size of our first one and that 10 years from now we will all take pride in the part we played in the movement to lower death rates from oral cancer. My wish is that our esteemed leader, Brian, will still be calling me 20 years from now, pushing and prodding at me to get things done. Not since my husband pushed me to finish nursing school have I had someone support me so strongly in something I wanted to do.
I wish all of you could be there on the 9th but for those that can't make it we will take tons of pictures and make sure you all get some.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#49773 03-30-2005 05:46 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I want to thank all of you, and especially Minnie, for making this first attempt at an open, public fund-raiser possible. An event that will help the foundation's mission of spreading the word about the disease and early detection, while helping the foundation stay financially alive and viable. As to Minnie's wish about the future.... my wish, is that we are all here 20 years from now, and that we have by then made a major reduction in the death rate from this disease through public awareness, and the spin off of that awareness, finding it early when it is most survivable. This is just a beginning, and I am grateful for the hours and hours of hard work that Minnie and others have done in the service of complete strangers, and for the benefit of future individuals they will never meet. Their giving spirit makes mine soar, and I am humbled at the depth of their commitment to make a difference.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#49774 03-31-2005 09:45 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thank you Minnie and Brian for everything you both do! Here's wishing that we are all here 20 years from now!!!God Bless!!Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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