#49174 11-26-2007 11:38 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I saw my Dr at the James Cancer Center today. Told me the healing of my tongue is coming along fine, but that he could feel something on the opposite side that he wants to check further. I am being scheduled for another PetScan to see what it might be. Had the unbelievable happen too.. Got there early and because of a lot of rained delayed patients, I got in and out very early. LOL Just loved it. Have a great day all. Forgot, met with the OC research people too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | |
#49175 11-28-2007 03:25 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | Hey Jim -- You got out EARLY at the James? That is a miracle!!! ;-) My thoughts are with you on the PET -- hope it is just tissue healing. All the best! Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | |
#49176 11-28-2007 12:40 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I was very surprised, I sat down in the waiting room and less than 5 minutes later they called me for the weigh in and questions. As soon as that was finished, I went right to the room and Ozer was there within 5 minutes or less. Then the reasearch team took me for bloodwork, no wait there, then the mouth swap and of course the urnine thing and I was finished. Hard to believe isn't it Jeff.. LOL I hope you get thru this fast on your next visit. Maybe it was because our Minister went with me and the Lord helped . LOL Have a great one Jeff
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | |
#49177 11-28-2007 03:56 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Jun 2007 Posts: 510 | Jim: Let us know when your PET is scheduled, so that we can say a few extra prayers for you!
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement; T2 N2-B M0 Stage IV-A 28 IMRT + 6 Paclitaxel/Carboplatin Getting stronger every day!
| | |
#49178 11-29-2007 09:18 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I thought maybe today I would find out the date, I even called this morning and was supposed to get a return call. It's now 3:17 and no call as of now. I will post it ho. Thanks for the prayers too..
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | |
#49179 11-29-2007 09:48 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Jim - it may not hurt to call back, especially if you ask for one of the office people by name. I had to smile when you mentioned your minister going with you and how it seemed to help. My daughter who went with my son and me several times usually had her police lieutenant uniform on (she was on her way to work) and we got great service, too!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | |
#49180 11-29-2007 01:39 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | It's funny how a uniform can influence people,, and the bible especially LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | |
#49181 11-30-2007 12:07 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Have PetScan date set, I go for PetScan the 7th of Dec and have The CScan the 5th of Dec. Dr wants them both done. His secretary called this morning.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | |
#49182 11-30-2007 03:32 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Jun 2007 Posts: 510 | Best of luck with your scans, Jim! You KNOW we'll be praying for good reports from both scans.
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement; T2 N2-B M0 Stage IV-A 28 IMRT + 6 Paclitaxel/Carboplatin Getting stronger every day!
| | |
#49183 11-30-2007 05:30 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I'm one guy that needs all the prayers he can get and I thank you for them..I'll do some praying in Church Sunday for everyone in the forums.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | |
#49184 12-03-2007 03:37 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I just found out today that my ins is only going to cover 80% of the cost for the CScan. I have to call them and cancel it for Wed and see if that Dr will ok my going local and getting it done. Then they can snd thm a cd.. Dr Ozer oked that for the PetScan so I hope this one agrees to it too. I have enough bills coming in from the Drs here and in Morgantown ,WVa
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | |
Forums23 Topics18,168 Posts196,925 Members13,103 | Most Online458 Jan 16th, 2020 | | | |