#4919 01-30-2005 08:41 PM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | Hello Debbie,
How is your husband doing? I hope he is doing ok with the treatments. We have spoken before and I hope you and your husband and family are ok.
God Bless
Stephany
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#4920 01-30-2005 08:50 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Charm, Please tell me what your husband's name is? Beyond that I don't have words to express what is in my heart......
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#4921 01-31-2005 02:21 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear Charm,
I am so sorry to hear of your husbands reoccurrance. No words come as I sit here thinking about your young children. Try and enjoy the weekend at the beach.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#4922 01-31-2005 04:04 PM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Charm, I am sorry to read the news of your husband. May God give you all comfort and peace.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#4923 02-01-2005 09:43 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Charm,
I am so sorry to hear your news. My heart cries for you and your family. At times like this I feel so helpless but I want you to know I will be praying for you and your family.
God Bless,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#4924 02-01-2005 02:49 PM | Joined: Jun 2004 Posts: 106 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 106 | Dear Charm,
I am so sorry. I hope you and your family will be able to enjoy the time you have together. Try to take it one day at the time, although I know how much effort that will take.
You are not alone.
Love, Leena
scc right tonsil T1N1M0, right tonsillectomy + modified neck dissection 3/04, radiation IMRT both sides X33 ended 6/04.
Also had renal cell carcinoma, left kidney removed 11/04
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#4925 02-01-2005 05:24 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Charm,
I'm really so sorry to hear the update on your husband. I can relate to your situation. Being told that a loved one should go into palliative care can be a bit of a shock. I felt as though I had the wind knocked out of me and pretty much felt like passing out. I did, however, take your attitude and made the most of the time. I'm sure others have said this to you already, but you really need to take care of yourself too. I can't stress that enough. Take advantage of the help that hospice offers you as a caregiver. They have wonderful support for both the patient and family.
You are in my thoughts.
All my best,
D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#4926 02-01-2005 05:53 PM | Joined: Jan 2005 Posts: 191 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 191 | Charm, I'm a beginner at this. Of course, I feel so terrible at the news you are hearing. People I know personally have really been impressed with Hospice services. I'm hoping this is the case in your area too.
Jen | | |
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