#48408 06-30-2007 04:30 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello All!
It's so nice to be able to communicate again.
I Saw the Chemo Doctor on Monday. He said all margins were clear. Then he proceeded to "dig" (Really hurt!) and feel all over the chest and under the arm pits and sides of the chest.
Long story short no chemo. I was so relieved but at the same time I am finding it hard to rejoice at any good news as I pray everyday for all the people afflicted with this disease and do not want to upset people who must have it.
On the same token, I realize that some peoples TX forgo surgery and get chemo and do not have to face the "pains" of surgery. We are all in this War together but fight in different battles with the same intention of destroying this beast within us.
I had my mask fitted yesterday (Friday). No problems, no discomfort. All went very well and smooth. They put tape on the mask and marked it with ink in lue of tattoos on the skin.
Now here
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#48409 06-30-2007 08:37 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Petey you have skirted around what is happening with you but never really come out and say it.I feel you are thinking like i do, that our problems are nothing compared to others on theses boards,but you are wrong.
Sit down, take a deep breath,and share it all,then let us help you!!!
You are no less deserving than any one else,no matter what your past history and when all said and done your compassion towards your fellow sufferers is second to none,so why not let us be as proactive for you as you are for everyone else.
I'll give you a qoute " A problem shared is a problem halved"
Let us in Petey.
love Liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#48410 06-30-2007 09:02 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hey Petey, your post really touched my heart, we cannot undo the past, we can only push forward, you know I am thinking of you and praying for you. Carol
p.s. crab cakes for dinner, SMILE!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#48411 06-30-2007 11:17 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Petey,
Get to the docs and have them take a look at the bumps, and don't beat yourself up over the unknown. Everyday you may be presented with a challenge more difficult that the one before so dig deep and use that courage and inner strength you have and tackle one at a time until there all solved.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#48412 06-30-2007 03:21 PM | Joined: Jul 2006 Posts: 68 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2006 Posts: 68 | petey
yes tell the doc and have him look at them.i to drank all the time i've been sober on 7-12-07 21 tears and it is the best thing i ever done.my cancer is nothing compared to some in here my prayers r with all,but i worry about it every single day when i get a sore in my mouth or a bump in there any where i bite my tongue all the time because it swells so much,i'm always on the phone to my doc.this is the only time i talk about this because my husband and kids don't like to or hear any thing about it.yes please call your doc when u feel anything that u don't think should be there.
lynn
linda anderson
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#48413 06-30-2007 11:47 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Petey,
You are one of the most compassionate people that has come to this forum since I have been here. I hope that your family comes around someday and they realize what a wonderful human being you have become. Your alcohol addiction made you what you were and cancer has made you what you are today. It is their loss and our gain!
I wouldn't wait until your next appointment to tell the doc about your lumps. I would be at his office first thing tomorrow. None of us know what is going on in your neck, but I'm sure it is important to know before the radiation is started. The planned treatment may have to be changed based on the outcome of checking your neck.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#48414 07-01-2007 12:41 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Pete, please listen to the advice from Jerry and others and get checked first thing tomorrow am! Let us know what is happening please....I am praying for you! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#48415 07-01-2007 09:02 AM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2007 Posts: 168 | Hi Petey, what good does it do to kill myself trying to save myself? Sunburns and cancer don't mix. There are 3 very important steps that help with situations just as yours and when I was going through my bankruptcy due to my life choices I remembered that I was starting a new life. Yes it hurt and it was difficult to lose everything but it freed me to completely start over. I didn't just give up, I just gave up when the fight was making me insane just like I did when walked into my first meeting. Common sense says go to the doc and have the lumps checked. If you keep yourself sick your property will sell on the courthouse steps anyway. Good Luck
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
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#48416 07-01-2007 10:24 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Petey..I wrote you a note today that didn't get posted somehow, so I will write again. You are special to all of us, and you can tell that we all agree that you need to go tomorrow to get checked. It is probably related to some over-reaction due to your over-activity, but who knows?? You might need an antibiotic....or you might need more. You won't know until you go, and you can't afford to have lingering questions like this as you prepare for your rad. series.
Please......?? Write us tomorrow and tell us what you find out. You've got us worried now, so don't leave us hanging. OK?
XO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#48417 07-01-2007 10:26 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Petey....for these "bumps" to have appeared so suddenly seems to me a good sign, but I am no doctor, and good sense tells you and the rest of us for you to not wait to get them checked out
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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