#48063 06-01-2007 12:07 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) |  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Yesterday i spent the whole day with my daughter and Grandaughter.I returned feeling that her little body had breathed the life back into me, hearing her call me Nana for the first tme lifted that lead weight that has been round my heart for the last few months,and tomorrow i am having my youngest Grandaughter Josie for her first stop over,so my son and his partner can go out to celebrate his birthday.Both the children bombarded me with requests for babysitting dates but i was very reluctant to commit until i know for sure Robin is not going to ask me to go back.I heard from his sister last night that he didnt make the doctors appointment on Tuesday and my heart sunk again,but this morning the sun is shining and i am detemined until i get a call saying please come back, i need you,that i am staying where i am.He hasnt picked up the phone once not even to make sure i got home safely and pleas from his family to get in touch have fallen on deaf ears.So tomorrow i will be up to my ears in baby talc and nappiesand i will just continue to do the same as always .....live each day at a time.
God Bless you for ALL your support,and i hope i can still be a usual member of this forum.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | |
#48064 06-01-2007 10:14 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Liz,
You're experience is just as important as the ones that had the cancer Tx or the children or siblings or the parents. That's the value of this site; the combined experience and wisdom of all affected by Oral cancer. Just think of all the future people who will benefit from your knowledge. Do not let that go to waste.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
#48065 06-03-2007 10:20 AM | Joined: Nov 2006 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 93 | Liz,
Can support your decision anytime.
This is not a one size fits all disease.
Please continue to post, many here can benefit from your experience, as David said.
Maggie
caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
| | |
| Forums23 Topics18,199 Posts197,006 Members13,186 | | Most Online614
Jul 29th, 2024 | | |
|
