#48023 04-17-2007 05:20 PM | Joined: Feb 2007 Posts: 76 Senior Member (75+ posts) | OP Senior Member (75+ posts) Joined: Feb 2007 Posts: 76 | Today was Marvins last rad treatment. He was really tired and had a rough start to the day. But he made it and we are now ready to let his healing begin. They told us that the rad would work for up to 6 more weeks. They will be leaving his tube in until they see he starts eating by mouth and gaining weight. It will be a nice change for him not to have to travel 120 miles round trip each day for awhile. I am sure he can use the extra travel time for rest here at home. We were told to make sure that he keeps getting enough cans down and extra water. He seems to be having alot of thick mucus today(which has caused him to not be able to keep his food down that we got in him) We hope that by getting extra water in him this may help with the thick stuff. He thought he would sleep in a recliner so that he isnt laying down to see if that helps him. He had a total of 40 treatments.
Barb CG for Marvin.
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#48024 04-17-2007 07:35 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Barb, Congratulations on getting through treatment. The next few weeks will be the worst so keep him hydrated. A humidifier will help a lot also.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#48025 04-18-2007 01:06 AM | Joined: Jan 2007 Posts: 50 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jan 2007 Posts: 50 | Hi Barb,
So glad to hear you and Marvin are finished. You will both get the much needed rest you need now after logging in all those miles. I think you spent about 160hrs on the road! That is almost 7 days! Clint hasn't been eating as much so I'm pushing the Jevity. He was doing pretty good until the last couple weeks. Clint finished today also. He did get a couple injections to boost his RBC and WBC also. Now we go back in 2 weeks. Mom got her PET Scan results today and it only showed the area in the lung. Her doctor is going to do a consult with a pulmonary doctor and go from there. Vicki
Care giver for Stage IV Base of Tongue TXN3M0 Neck Dissection 1-9-07 IMRT & 8 weekly Cisplatin 2/20/07 - 4/17/07
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#48026 04-18-2007 04:20 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Barb, so glad for you both that the rad is over. Here's a hint- keep some Pedialyte and mild flavored Gatoraid in your pantry. When Marvin is not feeling up to much nutrition or has problems with keeping food down, give him the Pedialyte or Gatoraid as a boost for electrolytes[gatoraid was hard on John's stomach sometimes -the Pedialyte never caused as problem] We would do 6 or 8 oz by peg every few hrs. on days he could not tolerate anything else. 40 tx. WOW! I know you both are really tired. Amy in the Oz
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#48027 04-24-2007 04:24 PM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Feb 2007 Posts: 168 | Congrats to you BOTH. There are still quite a few weeks of some ups and downs but you guys are on your way to recovery.
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you. Lee
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#48028 04-25-2007 10:43 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | The next 2 to 3 weeks will be the worst so be prepared. Keep the water and food pouring in. Carnation Instant Breakfast VHC was a life saver for me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#48029 04-30-2007 03:40 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Good luck both, the next week or two will be hard
Love Liz in the Uk
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#48030 05-17-2007 09:59 AM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Mar 2007 Posts: 179 | HI, We are 16 days since our last rad! It is still hard. Tom says he doesn't believe the 3 week number is magic. Everyone says it takes 3 weeks to notice a difference. I can't wait!! He still has a severe sore throat. I am encouraging him to keep tyring to swallow. You sould see the looks I get! Hang in there, the light is starting to shine through! God BLess
Lady joe
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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#48031 05-17-2007 04:15 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Hi, LJ- Not everyone I know says 3 weeks is the magic number and it certainly was not for us :rolleyes: The majic number is when the person enduring this tx. starts feeling better-different for everyone- 16 days out of rad is still "feeling the results of rad" for most. Trying to swalow is good- sleeping oar resting when you need to is good-keeping up with pain control is good-experimenting with food is good- taking your time is good. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#48032 05-17-2007 09:23 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I have to agree with Amy - there was no "magic" change. It was more like the least perceptible change imaginable. In fact, change in the early months was measured in three week increments for quite a while. It is a very slow healing process. I'm not sharing to dissapoint anyone, just to not let your expectations get damaged by the slowness of it all. A few months and you might be eating some solid foods and even tasting most of it!
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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