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#47640 02-25-2007 03:09 PM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Lee - my son also had trouble finding the Carnation VHC. I finally got it online. If you just do a search for Carnation VHC you'll see several sites that supply it. It might be a good idea to only get a small quantity to see if you like it. My son's taste seemed to change quite often sometimes within just a few hours. In the beginning he liked tapioca but that didn't last long, then softly scrambled eggs, milkshakes going from chocolate, strawberry, vanilla to no milkshakes at all. Chicken noodle soups lasted quite a while and grilled cheese with lots of butter. Now he enjoys most everything except not cheese (too sticky) and no chocolate. I guess you just have to try different stuff and see what works. Good luck with your treatment. It's a rough roller coaster ride but you can do it!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#47641 02-26-2007 06:26 PM
Joined: Feb 2007
Posts: 168
lee33 Offline OP
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Feb 2007
Posts: 168
Thanks to everyone. I'm still swallowing but have lost mostly all taste in the last week. It's neat, the only thing that is good is plain iceberg salad, cucumbers and baby carrots. I never thought I would like a plain salad. Unfortunately it's not much help calorie wise but it allows me to continue eating as there's plenty of moisture invovled. I think it is now to the drinks mixed with 8 ounces of milk. We'll see how long that lasts, my tonsil area and throat are dry and burning now. I'm almost halfway on my rads and did my second chemo today so I seem to be keeping pace with what seems to be the normal time ranges for the changes. I'm going to look for the VHC though. I lost 12 lbs so far and my dr.s aren't exactly pleased. I still am about 15 lbs away from my ideal weight for my size though. It's been 13 years since I've seen that though. Thanks again.


Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
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