Did anyone experience "Restless Leg Syndrome" as they came off the medications? My legs are keeping me awake almost all night every night. They feel like their going to sleep (you know that tingling feeling) and ache real bad. I didn't know if this may be a result of coming off the morphine or just a coincidense.

I sure would appreciate any feedback.

Max, this is an uneducated hunch, but I'll wager it is related to getting off the drugs. John had some weird things happen when he got off the fentanyl patch. He also had a bad "restless leg syndrome" when he was given Benedryl iv before his 1st Erbitux tx. Drugs [getting on and off] effect people in many ways. Ask your favorite Doc about this and see if there is a solution. You need to sleep. Amy

max,
my ma has a similar problem. she saw a neurologist who prescribed meds to help deal w/the discomfort. in her case, she has been experiencing what they termed a form of neuropathy possibly due to a pretty aggressive regimen of chemo. not sure of your particular situation, but talk w/your doc. i know the ache can be quite uncomfortable and hope you're able to pinpoint what it is so that you can get relief. best to you and feel free to drop me an email if i can answer any questions.

dave

Thanks for the input. I have been off all of the drugs for a week now. I weaned myself off of the morphine over a three week period. I spent the last week taking only half of a 15mg IR in the morning, so I didn't think that I would have issues with it this long.

My family doctor prescribed Requip which is a drug for RLS but its not helping.

Maybe it is still some withdrawl symptoms.

Thanks again

Are you still taking antiemetics? I had restless legs after taking what I believe was reglan, the doc told me I might. I was also taking zofran, compazine and decadron. I stopped with the reglan, but after my third chemo, I experienced "restless body syndrome". I apparently had a reaction to the compazine, some people do I was told. I felt like my body was crawling inside out, went to the hospital and was given benadryl. Hope you find some relief.

Max,

I think I read somewhere that you can be susceptible to RLS if you get even moderately dehydrated. I've noticed over time that that seemed to be true for me, so I try to be sure to keep my water intake high enough to counteract it.

Cathy

I did not have chemo, radiation only (I was blessed to have found the tumor early). I did take zofran and compazine but I have not had any meds (including the morphine) for over a week now.

I will watch the water intake, but I do drink quite a bit because of the dry mouth.

Thanks again.