#4576 01-20-2005 03:08 PM | Joined: Mar 2004 Posts: 117 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Mar 2004 Posts: 117 | Danny,
Can't wait to meet you. Team Boland is going to include my parents, 2 sisters, 1 sister in law, and at least two nieces
SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
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#4577 02-18-2005 05:26 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Hey Danny -- where I can get more info on this? I've been away for awhile and would love to see if my wife and I can fit this into our schedule!!
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#4578 02-18-2005 07:47 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Go to the activism forum and you can read all about it. The walk will be held as a fund raiser for the Oral Cancer Foundation. Minnie is in charge of it. You can also email minnie to find out the details.
I am lining up sponsers at $5.00 per mile walked. Figure I can at least walk 10 miles so I hope to help defray some expenses Brian has keeping the website up & helping so many people.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#4579 02-18-2005 11:25 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | For info on this walk, you can also go to the Foundation's Homepage, click on Site Map, then scroll down and click on Oral Cancer Events. While there, check out the info on the 10th International Congress on Oral Cancer. It is being held in Crete on April 19 - 24 and our own Brian Hill is a keynote speaker! I am so thrilled for you, Brian and if I had the funds, I think I would be booking a trip to Crete. I would love to hear your presentation. I just know you will WOW them! It seems like all your hard work is finally paying off. Just think of it....international recognition! I think I can speak for everyone when I say how proud we are of you. Go get 'em!!!  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#4580 02-18-2005 05:14 PM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | The actual link to the information on the walk is at the bottom of the events page, and that information is being updated weekly as Minnie feeds me more data. Yes indeed I am going to The World Health Organization as a Keynote speaker... between that and testifying before congress in the next 6 weeks at the invitation of people in the NIH, and the recent award at the National Press Club for advocacy work from the NIDCR, and in May an award in Madison Square Garden from NYU for the same thing....some one might think that I could be getting a big head. Actually, what I am getting is a BIG HEADACHE from all this, and really tired... We are though, making progress, and that progress is being noticed by those in power. Those in power can effect the changes that need to take place so that public literacy and awareness, can lead to early detection, which can lead to fewer deaths from the disease. That is my dream to see in my lifetime, an actual reduction in the death rates that haven't moved in 50 years. You have to realize that my perspective on all these accolades is that they are really tools. It isn't about me, legacy, or ego. These events are actually tools that give me the credibility to get into the office of the NIDCR director, credibility that gets someone in power to take my call, credibility that opens doors to opinion makers, that wouldn't budge just 6 months ago. But my hat size is still the same... http://www.oralcancerfoundation.org/events/index.htm main page http://www.oralcancerfoundation.org/events/current_events.htm current events http://www.oralcancerfoundation.org/volunteer/pappou_kids.htm past events
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#4581 02-18-2005 05:39 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Brian, I'm sorry I didn't complete the instructions for the events page. I figured people would know once they got to that page, but I forget that not everyone is an internet pro. Thanks for posting the links. I'm not surprised at your humble reply. I know your work is all about awareness, etc., but I am still proud of you! Without you, there would be no OCF and therefore no increase in the awareness of this disease and no decline in the mortality rates would be forthcoming. Modesty is all well and good, but methinks ye be too modest.  Your hat may still be small, but your heart certainly isn't. Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#4582 02-18-2005 10:03 PM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | Brian,
I am so sorry i have to miss this walk. I am just too far away in LA and taking care of my mom and working :-( But please let us know how it is and also,...Will you be posting pics afterwards? That would be neat to see.
God Bless you!
Stephany
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#4583 02-19-2005 01:44 PM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | Steph-- We have other people around the country that want to put on walks this year. As I talk with each of them and understand their desires and abilities, we will likely have more events. As they start to get put together we will post them. Sooner or later one will come to your (and my) part of the world. I hope that we will have not only a ton of photos at the end, but news stories to reprint, and more.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#4584 02-19-2005 03:06 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Congratulations Brian!!!
I second what Rosie posted. I am proud to be a member of the Oral Cancer Foundation. I have met members from all around the world. I can only try to give back all I have taken from the Oral Cancer Foundation. I plan on attending Minnie's walk with my wife and plan to have as many sponsers as I can.
Your site has touched many people in a way that can't be measured. I look forward to seeing everyone that attends the walk.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#4585 02-20-2005 08:00 AM | Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jul 2004 Posts: 188 Likes: 1 | Danny,
I won't be able to attend, but put me down as a sponser. I'll pledge $5.00 for each mile you walk.
How about it folks, who else can Danny Boy count in?
Good Health,
Chuck
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun.
It's always something
"Adversity doesn't build character, it reveals it."
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