#43796 09-02-2004 04:17 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Yippie tie yie yay! I am doing back flips for you, dude!! I will be praying for a speedy recovery.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#43797 09-03-2004 03:48 AM | Joined: May 2004 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: May 2004 Posts: 80 | congratulations, eric! i'm happy you've finished this stage and are back at home. may all your future scans turn out clear and you recover fully.
gita
sister diagnosed 11/03 SCC maxilla keratenizing stg IV T1N1Mx; 4-7 positive lymph nodes; dissection 12/03 left upper pallette removd; radiaton left side 35 sessions 2/04-4/04; recurrence same side 4/04; chemo began 5/04 incl cisplatine, 5fu, taxotere
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#43798 09-03-2004 09:55 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Erik,
I'm so happy your treatments are done...Now you can get back to normal life.
Where is Cottonwood Arizona anyways? Is it a small town?
My prayers are with you as always,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#43799 09-03-2004 10:50 AM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jun 2004 Posts: 85 | I think cottonwood is a tree that likes to live near water, like streams and rivers. Without alot of water in Arizona it's hard to believe a town was named for a tree they probably don't even have. Oops, I digress.
Erik, did you decide on the extra Chemo?
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#43800 09-03-2004 06:23 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | For the record: Cottonwood, Arizona is located in the central part of the state, halfway between Phoenix (hot) and Flagstaff (cool at 7,000 feet). We're at about 3000 feet and 15 minutes from Sedona and the beautiful Red Rocks there... The town is named after the Cottonwood trees, which are abundant along the Verde River, which in our case is really a creek (if that)...
As for the extra chemo, I'm leaning against it right now for this reason -- according to my radiation oncologist, it will be of very minimal benefit, if any... I've got some more research to do on it, though...
It's been intriguing to follow my radiation oncologist. For awhile he was gung ho about throwing everything and the kitchen sink at me -- ready to add 5FU to the mix, do an additional surgery to take out a section of lymph nodes that weren't getting a mega-dose of radiation, etc. Now, he's saying "It's OK to stop now -- everything else is of very minimal benefit." I'm kind of confused by it all... I think I'm going to check with MD Anderson about the extra chemo and get their take...
Frankly, I've felt like crap today. stomach-wise. While others throw up for 2-3 days with the Cisplatin, I just feel like I'm going to for 8-10 days... Not sure which is worse... High school football wasn't very fun tonight... And the team I was covering lost in overtime... rats...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#43801 09-03-2004 08:18 PM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jun 2004 Posts: 85 | Appreciate the chemo update and the cartography clarification for the geographically challenged. I have heard that when stomach normalcy returns, you feel that you are really on the way.
Pleased that you're up and about. Sorry for the overtime loss.
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#43802 09-03-2004 08:50 PM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jun 2004 Posts: 85 |
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#43803 09-04-2004 01:09 PM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Erik  I surely wish I could meet you! I love your attitude - and I LOVE telling Tom that you are working through all these treatments. He really loves his work - and all the people that work with him - and he hates being away from it on his 'bad' days. I'll let you all know how long his treatments last...guess it all depends, huh? Erik, you must just have a really thick skin for them to have to bombard you for so long!!! 0) WE are celebrating with you - and will look for your reports of NEGATIVE checkups! Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#43804 09-04-2004 07:48 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Thanks Nicki... I don't know about thick skin, it's more like "woody" skin these days around the radiation areas...
It's funny that in this world NEGATIVE is really a POSITIVE... (and vice-versa)... Blessings to you and Tom..
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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