#43666 08-09-2004 02:23 PM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | Davd,
I forget about insurance problems. I have been lucky to dodge that bullet. I used Roxicodone liquid for pain. It is great stuff. Ask about it, I think it is the liquid form of percocet and it works real fast!
Glenn | | |
#43667 08-09-2004 07:20 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | More about the Butler Flouride foam - the strength I am using is .9%. The typical "at the dentist office" flouride treatment is 1.1% Quite a noticeable difference. My dentist sells me the stuff at his cost for about 27 bucks a can.
Tip - bring your dental trays when you have your teeth cleaned and have a flouride treatment afterwards.
Nystatin is also typically a "swish and spit". That is some foul stuff to think about swallowing. I liked the Diflucan a lot better and it workd faster.
I vomited every time I used the pink magic - it still worked but I still had to go go through this puking thing. Then I was able to get a milkshake down and some Carnation Instant Breakfast. I couldn't do Boost or Ensure - it made me sick.
I was also on Duragesic patches and had morphine both in liquid and pill form for "breakthrough" pain - like the type you get from trying to swallow anything.
It all worked out though, but it was tough sledding for a while. In hindsite I don't regret not getting a PEG but it took a lot of work, caused a lot of pain and ended me up in the ER twice.
PS Cancer fatigue is a well known side effect and the reason that most of us qualify for SSDI. The chances of having fatigue from this are pretty common regardless of your meds.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#43668 08-10-2004 04:02 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | A friend had suggested I try Cetacaine spray when my throat was really bad. In my fog, I never followed through with the docs. I had an endoscopy last week and they used it to reduce the gag reflex just before we got started. It had a nifty thin straw and blasted down the throat, EXACTLY where it was hurting during radiation. It was banana flavored or something like that and numbed it in 2-3 seconds. I believe I heard them tell me there was several flavors just as the Naprox kicked in...and kicked me.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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