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#43608 07-25-2004 08:57 PM | Joined: Jul 2004 Posts: 7 Member |  Member
Joined: Jul 2004 Posts: 7 | Wow thank you everyone for your response, this has been a great help for me.
Tomorrow we get the PET scan done which will tell us if surgery is a possibility. Ed you mentioned MD Anderson and how they reviewed everything within 24 hours, whom exactly did you contact, I only found the | | |
#43609 07-26-2004 02:54 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Swati, I went to the New Patient section, filled out the self referral form and they called me the next day. I am not sure of exactly how it progressed but I remember them giving me a phone number after I faxed path reports and scan results and I was instructed to have my doctor call the doctor there. I don't know what I did with my notes but it was little effort for me to get it all done. Here is a link where I started: http://www.mdanderson.org/Departments/headandneck/dIndex.cfm?pn=DC30E167-7545-11D4-AEC300508BDCCE3A I hope this helps. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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