#43281 05-05-2004 12:17 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Cathy,
One milestone for me was finding this website. I have met so many wonderful supportive people I now call friends. I wasn't alone.
My treatment ended Nov 6th. It was tough ending treatment. Now what do I do? Your friends will help alot. This forum allows you to vent and ask any question you want to. Someone will answer.
I am back to work and I miss the time spent on the website. It was so comforting talking to people who traveled the path ahead of me. You to will one day be the one offering support to those who follow you. You will want to help in any way you can.
I only wish I could donate more money to the foundatation. Brian has donated his life to help all of us. He humbles me. I wish you nothing but good luck and good check-ups.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#43282 05-05-2004 10:56 PM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Hi, Cathy, this website was certainly a milestone for me. I honestly don`t know how I would have coped the last couple years without the true friends I`ve found on the Board, funny, when you think we`ve never met.Since Frank`s death, it`s kept me going, took me a while to jump back in, but I did, and like Dan, I wish I could donate more to the foundation,as far as Brian, he humbles me also !!!! Hugs, Dee | | |
#43283 05-06-2004 06:02 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi all
How DID any of us manage without this website.. I need my daily FIX of support and contact with all my special friends.. and Brian well he's one awesome dude..
love and hugs to you all
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#43284 05-06-2004 02:54 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Helen, Good luck tomorrow (6th) will be praying for you. Please let us know how it went, ok?
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#43285 05-07-2004 01:57 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Everybody....this website is so awesome...I only wish I had known about it when I was going thru radiation two summers ago...I visited my oncologist and oral surgeon this past week for check ups and was sooooo happy to see both are displaying the information about this site that I gave them. I know it will help others. Thank you Brian and everyone else!!!! To all Moms, Have a wonderful Mother's Day!!!!!!!!!!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#43286 05-07-2004 05:17 AM | Joined: Apr 2004 Posts: 50 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2004 Posts: 50 | Seeing my wife after surgery and seeing my little girl when I got home. Take care. | | |
#43287 05-07-2004 06:42 AM | Joined: Apr 2004 Posts: 33 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2004 Posts: 33 | As I've said, you guys are great! Carol, you're situation sounds just like mine - 50% tongue and 2 nodes. I've never been a popcorn fan but it's good to know that's will an option. | | |
#43288 05-07-2004 06:57 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Milestone!
My daughter, Sally's 4th birthday was Wednesday. She loves sushi, I actually ate some. The soy sauce was a bit saltier than I remember, but ....I am three months out from radiation and six month from a near total glossectomy. The thick salavia almost drove me insane, it was about 6-8 weeks afer radiation before it was thin enough for me to swallow.
When I stopped using the suction machine was a huge milestone.
When I got my prosthetic for the roof of my mouth. It helps me speak so much better.
When I started drinking again. About 3-4 weeks after surgery.
When I found this website.
And now...everyday seems like a milestone just to be alive.
PTL
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#43289 05-08-2004 02:20 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | I graduated fromk ChemoTherapy yesterday and will complete radiatiion Tuesday May 11. My advice is to consult with a Gastro doc early, then when you begin to not eat, call and schedule the Peg tube. It is a minor surgical procedure, do not put you to sleep, just " cut my head off if you want", medication.
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#43290 05-08-2004 06:09 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Congrats! Darrell only two more treatments to go. Symptoms will continue for awhile longer but you're on the downhill side now. How are your veins? Mine are toasted, they can't even draw blood from my arm now. They have to use my hand.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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