#4252 11-06-2004 05:42 AM | Joined: Apr 2004 Posts: 44 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2004 Posts: 44 | Hi gang! You know how time passes and family strays? If you're lucky you get another opportunity to unite and not mess up because of the standard excuses of being busy, lazy, difficult because of the distance, etc.
I haven't seen my cousin in more than twenty years but have kept up with general information through my mom. I must have been 13 when she had kids/got married and stuff. She called my mom today. Mama ran across some pictures my grandpa took long ago of my cousins (he's been dead since the 80s) and sent them to the second oldest one's (whom my mom seldom hears from) last known address. My mom stills writes/receives letters from the oldest one maybe once a year. Anyway, she called to thank my mom for the photos and in their conversation Mama found out that my cousin's husband is headed down to MD Anderson (again) for continuing cancer treatment.
I hate that I didn't know he had thyroid cancer last year (just about the time Ed was going through his stuff), had surgery (in Michigan) to remove the thyroid, kept having symptoms, sought a second opinion (at MD Anderson) and subsequently had 81 lymph nodes removed in a radical neck dissection 3 weeks ago.
BUT I have been blessed with being able reconnect with them and tell him about this board/you wonderful folks AND learn that he's coming back to Texas (where I live) for radiation therapy. I get to SEE them, too!
I hope Mark and Shelly will visit this site and find something they might be missing - and didn't even know they were missing and make new friends face with similar challenges/obstacles.
I was just sad and excited at the same time and had to share. Sorry, Ed! I really am capable of making a short post - just not right now!
Susan
Caregiver to Uptown/Ed, SCC Stage IV, Base of tongue - Completed Chemo (Cisplatnin/5FU) and 45 days' simultaneous Radiation 10/08/03
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#4253 11-11-2004 04:48 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Susan, I like your long posts!
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#4254 11-15-2004 07:11 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | (I like everything about her... :p )
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#4255 11-15-2004 09:32 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Now how do I know that your not her writing that???? and for the record I believe it should be 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#4256 11-16-2004 04:11 PM | Joined: Apr 2004 Posts: 44 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2004 Posts: 44 | Because you know ME.  He makes me blush with such flattery. He must not want me to cook tonight! (Trust me it's really bad when I do - and he's probably scratching his head wondering "She cooks?") Thank you, Mark. You are a gentleman (that didn't comment on my subject faux pax/missing words error) :p I just got carried away with excitement after all those years...
Caregiver to Uptown/Ed, SCC Stage IV, Base of tongue - Completed Chemo (Cisplatnin/5FU) and 45 days' simultaneous Radiation 10/08/03
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