Previous Thread
Next Thread
Print Thread
Page 2 of 2 1 2
#41985 11-14-2007 07:55 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
When my son's sense of taste were gone, he could still smell and once when I asked him why he seemed to hover over his soup bowl so long, he said being able to smell and breathing in the vapors deeply was almost like tasting. As he began taking in more and more nutrition, he would spend several moments just breathing in the food smell sort of like virtual tasting until the real taste came back.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#41986 11-14-2007 08:42 AM
Joined: May 2007
Posts: 632
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: May 2007
Posts: 632
We have 5 senses--all related and closely linked in every experience--sight, sound, smell, taste and touch.
Probably why some who can't eat, enjoy cooking for others--sight and touch.
Nausea--sight and smell can be serious triggers.
Kneading dough for bread or pizza bases--touch, sound
A pan bubbling/simmering in the next room combined with smell--yummy or off-putting depending on circumstances.
From my reading here, it's not so much cravings as enjoying 'what feels okay/good' at the time, which might be totally out of the norm.
From my own point of view, didn't have radiation, so can't contribute on that-induced issues, but when I could hardly open my jaw and had a lot of pain in it, I discovered ice-cream gave me some nutrition (Had never bothered much about it before), ditto savoury rice, rice pudding, any drink with ice in, soggy cereal and cookies dunked in tea/coffee.

Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#41987 11-14-2007 12:30 PM
Joined: Feb 2005
Posts: 2,019
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Feb 2005
Posts: 2,019
Actually much of what we experience as taste is really smell. We're only have taste bud receptors for sweet-savory-sour-salty and bitter but we experience much more to taste than that and that's because of smelling the food in our mouth. I had serious swallowing problems and for a year after rad couldn't swallow much of anything--but I LOVED to smell stuff. My husband complained sometimes that I'd practically put my nose in his plate. If I was hungry it would make me more hungry though so I had to be either full of Jevity or about to have some.

I agree my sense of smell never went away. Everything tasteed bad in the 3rd week and by the 4th week I was getting most of my calories through the tube.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#41988 11-14-2007 12:50 PM
Joined: May 2007
Posts: 666
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 666
I am not sure if I agree with you Nelie.
To me everything still smells ok. That has not changed. Take a good steak, It smells like it always did but if I eat it it tastes like crap.....


M


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
#41989 11-15-2007 02:42 AM
Joined: May 2007
Posts: 622
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 622
Likes: 1
Hi Jean

My smell has gotten much more acute. When I was not able to eat during and after treatments, I would always go *sniff* the real supper before dumping the liquid down my tube.... man that was good smile

Just one of the games I played to keep my sanity laugh


18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
#41990 11-15-2007 06:29 AM
Joined: Sep 2007
Posts: 79
ord_dfw Offline OP
Senior Member (75+ posts)
OP Offline
Senior Member (75+ posts)

Joined: Sep 2007
Posts: 79
I hope that the Thanksgiving turkey smells or tastes good to him!


* Root for Joe *
Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
#41991 11-16-2007 07:33 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I have the taste and saliva problem too, but when I see the lady in charge of the Cancer reasearch that I am in,, she gets me to smell graham crackers. I don't know why but it does get the juices flowing. I have to give her saliva samples as well as scrappings from my mouth amd of course the good old urine thing.. LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#41992 11-16-2007 07:55 AM
Joined: May 2007
Posts: 666
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 666
Hey Jim !
do you think the reason could be something other than the cracker smile

M


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
#41993 11-16-2007 12:57 PM
Joined: May 2007
Posts: 632
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: May 2007
Posts: 632
Boys will be boys--lol!
Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
Page 2 of 2 1 2

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
Mchaperon, ela madona, Bits4Brains, Jojo12, Louisianaman
13,327 Registered Users
Forum Statistics
Forums23
Topics18,250
Posts197,142
Members13,328
Most Online1,788
Jan 23rd, 2025
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5