#41985 11-14-2007 07:55 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | When my son's sense of taste were gone, he could still smell and once when I asked him why he seemed to hover over his soup bowl so long, he said being able to smell and breathing in the vapors deeply was almost like tasting. As he began taking in more and more nutrition, he would spend several moments just breathing in the food smell sort of like virtual tasting until the real taste came back.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#41986 11-14-2007 08:42 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | We have 5 senses--all related and closely linked in every experience--sight, sound, smell, taste and touch. Probably why some who can't eat, enjoy cooking for others--sight and touch. Nausea--sight and smell can be serious triggers. Kneading dough for bread or pizza bases--touch, sound A pan bubbling/simmering in the next room combined with smell--yummy or off-putting depending on circumstances. From my reading here, it's not so much cravings as enjoying 'what feels okay/good' at the time, which might be totally out of the norm. From my own point of view, didn't have radiation, so can't contribute on that-induced issues, but when I could hardly open my jaw and had a lot of pain in it, I discovered ice-cream gave me some nutrition (Had never bothered much about it before), ditto savoury rice, rice pudding, any drink with ice in, soggy cereal and cookies dunked in tea/coffee.
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#41987 11-14-2007 12:30 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Actually much of what we experience as taste is really smell. We're only have taste bud receptors for sweet-savory-sour-salty and bitter but we experience much more to taste than that and that's because of smelling the food in our mouth. I had serious swallowing problems and for a year after rad couldn't swallow much of anything--but I LOVED to smell stuff. My husband complained sometimes that I'd practically put my nose in his plate. If I was hungry it would make me more hungry though so I had to be either full of Jevity or about to have some.
I agree my sense of smell never went away. Everything tasteed bad in the 3rd week and by the 4th week I was getting most of my calories through the tube.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#41988 11-14-2007 12:50 PM | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | I am not sure if I agree with you Nelie. To me everything still smells ok. That has not changed. Take a good steak, It smells like it always did but if I eat it it tastes like crap.....
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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#41989 11-15-2007 02:42 AM | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 Likes: 1 | Hi Jean My smell has gotten much more acute. When I was not able to eat during and after treatments, I would always go *sniff* the real supper before dumping the liquid down my tube.... man that was good Just one of the games I played to keep my sanity  18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | |
#41990 11-15-2007 06:29 AM | Joined: Sep 2007 Posts: 79 Senior Member (75+ posts) | OP Senior Member (75+ posts) Joined: Sep 2007 Posts: 79 | I hope that the Thanksgiving turkey smells or tastes good to him!
* Root for Joe * Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
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#41991 11-16-2007 07:33 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I have the taste and saliva problem too, but when I see the lady in charge of the Cancer reasearch that I am in,, she gets me to smell graham crackers. I don't know why but it does get the juices flowing. I have to give her saliva samples as well as scrappings from my mouth amd of course the good old urine thing.. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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#41992 11-16-2007 07:55 AM | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | Hey Jim ! do you think the reason could be something other than the cracker M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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#41993 11-16-2007 12:57 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Boys will be boys--lol! Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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