Previous Thread
Next Thread
Print Thread
Page 3 of 3 1 2 3
Joined: Apr 2006
Posts: 378
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Apr 2006
Posts: 378
I think you made the right decision to get the PEG tube, it will make things easier for you during treatments.

Here's the thing, you are already very stressed out, you don't need the extra worry about what if's during treatment. 90% of patients having radiation for HNC get PEG tubes and use them at some point. It's a reasonable precaution that will give you peace of mind AND access for nutrition, hydration, and medications if your throat becomes too sore later on. Also it is not an either or with swallowing, you can and should continue to do that every day. It really helped my husband and was a factor in how quickly his swallowing recovered post treatment.

It's also very common for patients to take anti-anxiety medication such as Ativan or Xanax. Jack could not have gotten through the radiation treatments without it so don't be afraid to ask for a prescription.

Regards JoAnne


JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
Joined: Aug 2003
Posts: 1,627
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Aug 2003
Posts: 1,627
I'm glad you're getting the tube also. I would never suggest to anyone not to have the tube, I personally feel it should be required. What type of radiation are you having? IMRT radiation side effects are not as "tough" as the side effects for regular radiation. With IMRT is the only time I would even think about not having a PEG. Why put yourself through more pain and suffering then you need to? Keep swallowing water throughout treatment and you'll be fine. I had my tube put in before radiation, stopped eating at about 3 weeks, and didn't eat by mouth again for approx 4 months. Kept the tube for 9 months just in case! It never caused me a days worth of problem, in fact, it saved me alot of trouble.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
Page 3 of 3 1 2 3

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
Kpwin, Boost iV Miami, dcrowman, Yuka, monkeytoes
13,361 Registered Users
Forum Statistics
Forums23
Topics18,264
Posts197,178
Members13,361
Most Online1,788
Jan 23rd, 2025
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5