#40583     12-28-2006 10:36 AM      |       Joined:  Mar 2004  Posts: 417    "Above & Beyond" Member (300+ posts)   |      OP      "Above & Beyond" Member (300+ posts)    Joined:  Mar 2004  Posts: 417  |    I met with my oncologist today at VA Memphis. Since the platinum based drugs and I died when they tried to administer  Erbitux (acute annefelectic (spelling, I don't have a clue) allergic response).  I may be eligible for a clinical trial beginning next week involving a new third generation platinum based drug (Oxaliplatin) (infused)coupled with a pill (capecitabine) both yet to be established and approved by FDA. But if I don't qualify, I am still not throwing in the towel. We may have to go back to the older generation drugs. But I remain that this disease will eventually kill me, but not without a fight... Darrell         
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#40584     12-28-2006 11:33 AM      |       Joined:  Sep 2006  Posts: 8,311    Senior Patient Advocate Patient Advocate (old timer, 2000 posts)   |           Senior Patient Advocate Patient Advocate (old timer, 2000 posts)    Joined:  Sep 2006  Posts: 8,311  |    Darrell,
  Hang tough. We are all here to help and support you.        
David
  Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#40585     12-28-2006 03:10 PM      |       Joined:  Apr 2006  Posts: 583    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Apr 2006  Posts: 583  |    Darrell,
  I hope they will be able to put a stop to your recurrence.  You know that we are all here for you as David has said.  We will be waiting on the side lines and praying all will go well for you.
  I hope this new trial drug will you and many others as well.
  Take Care Diane        
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06...      B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14.  9 yrs cancer free as of Jan. 2015
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#40586     12-28-2006 03:14 PM      |       Joined:  Apr 2006  Posts: 583    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Apr 2006  Posts: 583  |    OOPS !
  The sentence was:  I hope this new trial drug will HELP you and many others as well.   
  (just got new laptop & not use to it yet)
  Take care..  Diane        
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06...      B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14.  9 yrs cancer free as of Jan. 2015
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#40587     12-29-2006 05:00 AM      |       Joined:  Oct 2006  Posts: 248    Gold Member (200+ posts)   |           Gold Member (200+ posts)    Joined:  Oct 2006  Posts: 248  |    Well I just left work and I listened to 3 healthy people complain to me about money, work schedules, Kids, etc.----- Then I come home and read this post by Darrell who is facing mortality head on, squeezing every drop he can out of life, with dignity and strengt.Darrell your a wonderful role model to so many. Keep going strong and good luck with the experimental tx.        
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad  2x Cisplatin 5FU.  acute leuk 1998.
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#40588     12-30-2006 03:55 AM      |       Joined:  Mar 2004  Posts: 417    "Above & Beyond" Member (300+ posts)   |      OP      "Above & Beyond" Member (300+ posts)    Joined:  Mar 2004  Posts: 417  |    Nobody wants to be around a complainer. I face my disease and it's subsequent outcome with faith and hope. I know that this disease will kill me but I am not going to go out without a fight. I too butchered the syntax in my original post.  Diane, removed the jugular vain? That's what they wanted to do in my first met's but they did'nt think I would survive the surgery. In hindsight maybe that's What I should have done. The tumor was spiraled around the carotid artery and the Jugular vein. Keep Laughing, It's good for you. Darrell        
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#40589     12-30-2006 05:55 AM      |       Joined:  Apr 2006  Posts: 583    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Apr 2006  Posts: 583  |    Hi Darrell,
  Yes, they removed the Jugular Vein and when I found out I almost fell off the exam table!   We have all been under the understanding we could die if this was done.  NO!  You have two veins.  Plus the body will take another vein on that side and widen it which will replace the removed Vein.  That is what I was told.
  You are not whining Darrell.  You are just trying to face this disease the best you can.  You do have the right to complain.  We all do!  None of us woke up one day and said "I want cancer in my life"   Hindsight is an interesting word.  Just how far back should we all go?  I should have payed more attention when my cancer first started.  Maybe I should have not taken that first cigarette at age 13.   I think it is just to late for all that.  Instead we should all fight with what we have.  You are so right about that!  We all need to remind ourselves of that. Thanks Darrell for reminding us to fight!
  Take care.. Diane   Ps.  Happy New Year!        
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06...      B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14.  9 yrs cancer free as of Jan. 2015
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#40590     12-31-2006 03:09 PM      |       Joined:  Mar 2006  Posts: 62    Supporting Member (50+ posts)   |           Supporting Member (50+ posts)    Joined:  Mar 2006  Posts: 62  |    Darrell, Gil and I are thinking of you tonight. We are hoping that your upcoming treatment is successful. We  are grateful for your thoughtful advice and great sense of humor. You have given yourself on this wonderful forum. You deserve a 2007 filled with love and hope.        
caregiver to Gil dx SCC 11/05 T2N2M0 finished tx 3/10/06 stage 4 rt tonsil,BOT,2 lymphnodes,35IRMT,6 chemo
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