#39708 02-13-2006 11:24 AM | Joined: Feb 2006 Posts: 9 Member | OP Member Joined: Feb 2006 Posts: 9 | At our first meeting with the RO, we mentioned IMRT, the doctor glossed over it and said that "We do that here but in this case we want to cover a larger area."( Dr. is rough around the edges). Does this make sense? My Mom had a tumor removed from her mouth and 11 lymph nodes all came back clean. Some residual cancer remains. We are going to the radiologist tommorrow to get pretreatment xrays. Should I revisit the IMRT topic. Thank you | | |
#39709 02-13-2006 11:59 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2004 Posts: 417 | IMRT is external beam radiation therapy where the beam is supposed to be more controlled as to depth and coverage area. It is ideally, more precise, computer controlled. But radiation is radiation. It has side effects and IMRT, as well, is no exception to that rule. She may require chemo along with the radiation. Almost all the major cancer centers are in agreement that Radiation and chemo are the best approach. But, there are no guarantees. My RO and MO crossed all he T's and dotted all the I's but I had a reoccurrence. Sometimes it just happens. Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#39710 02-13-2006 12:13 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | MK May Several members have had conventional radiation as apposed to IMRT, and my own understanding is that it is based on the size of the area that they consider needs to be radiated, please try a search of the site as I have not enough knowledge to advise you on this... Sunshine.. love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#39711 02-13-2006 02:34 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | MK, where is her primary tumor? You also said that after surgery, more cancer was found. Possibly the cancer is multiple locations and they feel IMRT is not the best option. It needs to be said often on here that not all cancers can be treated with IMRT. It would be great if they could, but it's simply not the case. Good luck with it all. Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#39712 02-13-2006 08:57 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I would certainly revisit the IMRT topic for your own peace of mind but bear in mind that not all are candidates for IMRT. I had a very large tumor, 3x6cm, but no node involvement. They did bilateral irradiation however and also zapped various other areas that they suspected could cause problems later on. My tumor was well differentiated and focally invasive so I was a good candidate for IMRT. It helped also that my RO is a professor of clinical radiology (specializing in IMRT) at a major CCC. I would get a second opinion from a CCC if you are not already at one.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#39713 02-14-2006 02:10 AM | Joined: Feb 2006 Posts: 9 Member | OP Member Joined: Feb 2006 Posts: 9 | Thank you all for the replys. Minniea, my Mom's tumor was on the left side, mandible area. One month after sugery biopsies were done on both sides of her mouth which came back positive for squamous cell.
All of your support means a great deal to my family and me. Thank you. | | |
#39714 02-14-2006 01:46 PM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2005 Posts: 624 | I would agree with Gary to get another opinion on IMRT -- both the major CCCs at which we consulted use IMRT more-or-less exclusively for their HNC patients, many presenting with extensive and metastacized disease. This allows them to spare, when possible, salivary fiunction and to reduce irradiation of non-target organs, thus greatly reducing long-term side-effects. It is the radiation planning which determines the size and extent of the field; in fact my husband, who had Stage IV SCC with mets to two nodes was given the even more precisely focused TomoTherapy IMRT. But he had an RO whose sole clinical and research focus is oral cancer and who had many years experience with this disease.
In any case, you certainly have the right to ask questions of the RO about the radiaion plan, how much of your mom's salivary function will be spared, impact on jaw and teeth, etc. and to be prepared to deal with the side-effects as they emerge.
Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#39715 02-14-2006 04:32 PM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Nov 2002 Posts: 274 | I use a CCC in New york City, Memorial Sloan Kettering Cancer Center, and they still use conventional, 3D conformal and IMRT on their Head and Neck patients. Like Gary says, not everyone is a candidate for IMRT. Newer is not always the answer, just make sure you have all the information to make the appropriate choices and sometimes conventional radiation is the correct choice.
Glenn | | |
#39716 02-14-2006 05:19 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Hi Gail, It is very apparent that you are the number one fan of IMRT, and I can appreciate that. We all wish we could have been fortunate enough to have IMRT. But, I worry sometimes that you are to gung ho with pushing this as THE best treatment. Please don't take me wrong here, your knowledge is valuable to this board and much needed. At the same time, if I were a newcomer and had to make a decision, the way you present IMRT would make me feel DISCOURAGED and cheated if my RO insisted on conventional, and it may make me keep looking around until I found an RO willing to give me IMRT..............even though conventional would be better for my type of cancer. I think we need to find a way to share the knowledge without making anyone feel as if they are the "unlucky" ones if they cannot have IMRT. Glad Barry is doing so well after treatment, he's been an inspiration to many of us. Take care, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#39717 02-14-2006 06:12 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | If Gail isn't the number one fan I certainly am. I am very grateful to have my salivary function return to normal AND my advanced stage cancer have a "complete response" for the past three years, with minimal side effects. I actually am having a somewhat normal life again.
When I started researching IMRT 3 years ago many radiation treatment centers didn't have the option on their equipment and wouldn't recommend going somewhere else (so as to not lose the money) - Radiation therapy can be as high as 5K a pop (it is a business after all). Everything that Gail said is based on fact. IMRT has, in fact, become a "standard of care" for H&N patients (as well as for prostate cancer as well).
It is also true that is some cases patients have been told that they are not candidates for IMRT and would be better served with XRT. My head & neck surgeon, although educated at a major CCC wasn't aware of the benefits of IMRT and I had to educate him.
The difference in Quality of Life (QOL)issues are substantial between the two types of radiation and I will always recommend the least healthy tissue damaging approach, IF at all possible. All of us are 'unlucky" to have this disease, in spite of what treatment options are available. Radiation in any way, shape or form is a brutal and extreme treatment and can lead to other serious health issues down the road, but they all beat death. Your comments to Gail are rude, speculative and un-warranted.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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