#3757 09-22-2004 05:45 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hi everyone. Its hard to believe but a year has past since this nightmere began.
After a needle biopsy turned up negitive I was told it could be a virus, but I new it was cancer.
Funny how you know certain things isnt it?
Dont you also find it funny that doctors go by the diagnosis date, but insurance companies go by treatment end date? Kinda sucks when you have 5 kids and cant get life insurance.
Now I start the process of the 1 year checkup.
Oncol today. CAT scans Sat. Rad/Oncol Mon. and Surg on Tues.
I feel great and am looking forward to an uneventful week.
Any prayers or encouragement would be greatly appreciated.
Thanks,
Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#3758 09-22-2004 06:19 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Robert,
Congratulations on this milestone! I hope all tests turn up clear -- and stay clear going forward.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#3759 09-22-2004 06:47 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Robert,
Prayers are going up for you for your one year to be clear and uneventful!
Take care and God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#3760 09-22-2004 06:56 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Robert,
Hoping all your tests come back clear. You were right in describing this last year as a nightmare though!! Hopefully the light at the end of the tunnel is getting brighter for you.
All my best to you and your great looking family.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#3761 09-22-2004 07:33 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Robert-
I will send up a prayer for negative test results and many, many more!! Hang in there and know that we all wish you and your family the best and we are there with you!! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#3762 09-22-2004 08:01 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Robert,
I am hoping all of your tests come back negative and your trials and tribulation around this nightmare become less and less...for more and more time!
God Bless,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#3763 09-22-2004 02:40 PM | Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jul 2004 Posts: 188 Likes: 1 | Robert,
Great to hear you're feeling well. I too hope you have an uneventful week. You'll be in my prayers as usual.
Say hello for me to all the good people at U of Chicago. I'll be in for my one year checkup in a couple of weeks.
Chuck
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun.
It's always something
"Adversity doesn't build character, it reveals it."
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#3764 09-23-2004 06:17 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Robert, One year, that is FANTASTIC!!!  I'm so happy for you and for your wife and children. How is the baby? I remember how it felt when Gary made a statement about what a good sign is was to make it one year. Hope you are feeling the same. Love, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#3765 09-23-2004 08:11 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Robert
It has to be a good week for you, I won't let it be anything else, I only want good news for everyone from here on in...
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#3766 09-23-2004 09:14 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | To Everyone:
Thank you. I wish I could take the time to thank all of you in person. You really are family.
Everone and everything on my end has gotten back to normal. In fact most of my children (4 of 5) dont even know I am going for my 1 year.
My oldest (Alison 9) is not only aware she insists on going with me on Sat for the scans.
I would love to think of this as a tender moment but I think she is mostly interested in going to the American Girl store downtown. I am half kidding of course. Being the oldest and watching cancer take my mom a year before I was diagonsed left her feeling like I was going to die just like grandmom. It really hit her hard. She is my angel. My only girl. The boys could care less. They are too young to understand.
Anyway I will post the results as soon as they become avalible. I saw my oncol yesterday and he said my throat looks great. everything is where it is suppose to be.
Thanks again to my extended family for your prayers, kind words, and positive thoughts. I will be praying for all of you.
Robert Hamilton & Family
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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