#37419 06-02-2004 04:33 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Dan: Very sorry to hear your news. Keep fighting because there is no way to be sure until the fat lady sings. Your positive attitude can be the difference. My prayers are with you and your family. Prayer works and if it is the Lord's plan, it will work for you also. I pray he will be with you and your family as you work through this and fight it. Love, Kirk.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#37420 06-02-2004 04:49 AM | Joined: Apr 2004 Posts: 50 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2004 Posts: 50 | Dan,
I have not been on this site long, diagnosed in early April. You have the heart of a lion. I am proud to have made your acquaintance.
Best regards,
John | | |
#37421 06-02-2004 07:26 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Dan,
Can't they move any faster than that on this? Why can't they get the tests scheduled sooner and why is this oncologist waiting so long to see you? I just had a CT scan of the lungs at a major cancer center. Took 24hr for appt and results from scan done at 5:PM were available the following morning. If I were you, I'd push to get the tests and appointment moved up. I'd also get a second opinion on surgery, chemo, and clinical trials at a major cancel center and I'd make that appointment now so you don't have another 2 weeks after the films are ready. Someone else just posted about having successful surgery on an inoperable tumor after getting a second opinion. How did your ENT and oncologist possibly miss all this and it get so out of control? Keep fighting!
You are in everyone's hearts and prayers.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#37422 06-02-2004 08:24 AM | Joined: Mar 2003 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Mar 2003 Posts: 251 | Dan,
I admire your courage and fortitude in the face of all you are going through. You truly are an inspiration.
Anita
Husband Dx 12/02 Stage 4 Tonsil Cancer T1N2bM0; surgery, radiation, chemo 1/03 - 4/03.
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#37423 06-02-2004 09:00 AM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | Dan,
You are in my prayers day and night. Keep fighting, and as my husband says "never ever give up!". I am going to send you a story on private email. I read it yesterday and I know that the prayers everyone sent my husband's way are what are keeping him alive. You have the prayers of not only your family and friends but everyone here on the OCF...remember they are your "guards" in this fight...and they are sending loads of love & protection. You are an inspiration.
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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#37424 06-02-2004 09:13 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Keeping fighting, my friend. And as someone else said, keep being stubborn against this!! I, too, would advocate being a bulldog with appointments, second opinions and such -- you deserve to be at the head of the line...
Praying for miracles for you and that you would know the peace "that passes all understanding" during this time...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#37425 06-02-2004 09:16 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | One more thing -- I've been reading a lot lately about nuitrition and the fight against cancer spread. I realize there is a lot of bogus info out there and it's hard to separate the wheat from the chaff, but some of this stuff also makes a lot of sense at least to my small mind (i.e. propping up your immune system with good eating, etc.)... Might be worth considering some of these "alternative" approaches in addition to all the familiar stuff, if you haven't already...
Love ya, kid... hang in there...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#37426 06-02-2004 09:39 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Dear Danny,
My heart and prayers go out to you and your family...I do pray for you everyday. You have and continue to be such an inspiration to me and to Dan, and to so many people on this board. I pray that they can find something to treat the cancer and for healing. Phil. 4:13 says "I can do all things thru Christ which strengthens me". Hang in there and know that you are loved!
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#37427 06-02-2004 10:42 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy,
I just want you to know how much we all love you and the prayers for you that are taking place all over the world. You are a true warrior and have touched me in so many ways, so many times. As everyone else has said, whatever you need please do not hesitate to ask. Somehow, someway it will be done for you, my friend.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#37428 06-02-2004 10:44 AM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Dan,
My heart breaks for you and your family. Keep your spirits up and keep fighting and being as stubborn as a mule if need be. We're all here for you and my prayers and uplifting thoughts are being sent your way.
Hang in there - we need you!
Hugs, Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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