#3695 09-20-2004 08:31 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | I'll be getting into Vegas on Thursday some time, probably later in the afternoon. I've already e-mailed with my phone number. Finally stateside in LA, and My first US gormet meal? Those mini-cheeseburgers at Denny's they have now. Go figure.
By the way, we're up to 27 people, not too bad for a cheap date.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3696 09-20-2004 10:06 PM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | Hi all-
Don & I are arriving on Friday afternoon...after finishing up with scheduled dentist appointment for Don. We are not staying at the Imperial Palace...I called to make reservations too late. Anyhow, I am really really excited about meeting everyone. Don is a little anxious because he only knows you all from reading the postings I've printed out for him...he still hasn't developed the nerve to learn the computer. Anyhow, I'll try reaching you guys as soon as we arrive. I know you'll make Don feel welcome. I truly feel this will be a wonderful trip for us.
See ya there...in jeans & t-shirts.
Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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#3697 09-21-2004 02:43 AM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | I had so wished to join you all... but have so much travel going on from Oct-December that I couldn't quite work this out. I do look forward to future meetings, and will be there with bells on! We are attending a BOA (Bands of America) Super Regional with DD's marching band the weekend of October 15th in St. Louis. Go Red and Silver Brigade! Very exciting as Whitney is a founding member of the band, Blue Valley West High School opened her freshman year, and they have gone from 65 members to 135 in four years. They will be going up against the big boys! and her last year of marching band, very sad for mom and dad  . The next weekend Chris and I fly to Orlando, look at housing, then drive to Ft. Lauderdale for our cruise.  In December, the whole family is flying to Ft. Lauderdale to cruise for Christmas week. Can you tell we are celebrating survivorship this year?!? We tried to budget in the OCF trip... maybe next year we could do Florida? DH is a budding travel agent and could maybe work some magic for us! Have a great time and I hope to see pictures posted! Sincerely, Lisa
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#3698 09-21-2004 03:23 AM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Lisa, I grew up in St. Louis, haven't been there for several years but still keep track of things. (GO RAMS) (STL was on the short list for a few minutes of places to have this shindig.) If you need some suggestions of some "traditional" St. Louis fare, let me know.
Celebrateing survivorship is the way it should be. Being thankful for the time we have left, it's precious short even without this disease.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3699 09-21-2004 09:15 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | So guys, what are your wives packing for Saturday?
I had planned on packing a dress or black pant suit for Saturday, shorts for daytime and slacks for evening. I had also planned on bringing dress slacks, shirt and sport jacket for hubby but if everyone is going to be in dungarees on Saturday night, I'll at least leave the jacket at home. He'll be in jeans the rest of the time and maybe Saturday also if all the rest of you are.
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#3700 09-21-2004 10:12 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Well this woman is taking capris for Friday and Saturday with kind of slinky black slacks for Saturday night. Telling my husband to leave the jacket home and wear comfortable khaki's and maybe that Hawaiian look for Saturday night and he is definitely the shorts guy the rest of the time. Looking forward to seeing everyone! We'll be in about 3 pm on Friday. - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#3701 09-21-2004 10:56 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | I've been waiting to post this, but I guess I need to 'fess up. As much as I wanted to, I won't be in Vegas either. I really wanted to meet all of you in person and I had hoped to make a motorcycle trip out of it, but I just can't shake lose the cash needed for the trip. I hope all of you that are going have an absolutely wonderful time! Maybe someone will hit a jackpot! Hope so...
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#3702 09-21-2004 11:03 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Ok....I'm a little envious Wish Tom and I could be there, too. Sounds like too much fun (water toasts and all...!) MARK - I think a Vegas shirt has LOTS of sequins, preferably depicting Elvis or dollar signs......some of them even have flashing lights! Enjoy, enjoy - and share it all with the rest of us next week! Love to each of you, and prayers for safe travels. Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#3703 09-21-2004 11:53 AM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 153 | best wishes to everyone going to Vagas. i know you will have a great time. how can you miss?
meanwhile i'm off to Grand Forks, ND to setup an instrument to image snowflakes this winter. the project is with UND.
i'll be thinking of you from the northland.
cu,
larryb | | |
#3704 09-21-2004 12:14 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Is it my imagination or is there some exicitment
in the air this week. I only wish I could have met more of you in person. I know whomever can't make it will be there in spirit.
The rest of us are going to have one hell of a time!!
See Ya Soon, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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