#3685 09-20-2004 08:36 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I'll go with jeans and collared shirt. Suit on Saturday if anyone else is up to it. Just call me Gumby...I am flexible.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#3686 09-20-2004 09:51 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Minniea,
We will miss meeting you Minniea. I think we all understand. Family will always come first with many of us. No apology needed.
I'll take alot of pitchers and email them to you.
Have a ball at her party. Will you be doing the Hokey-Pokey?
I checked the temp's for this week and it's in the low 90's daytime with lows at night around 65. I plan on jeans and a nice shirt. Shorts and my skinny legs every day! Rosie you could come in a gunny sack, Just be there!!
Love Ya All, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#3687 09-20-2004 11:18 AM | Joined: Mar 2003 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Mar 2003 Posts: 251 | Hope you all have a very good time. We won't be making the trip due to my overbooked work schedule. Since my husband's diagnosis, I seem to feel that I have to work double time to make all the ends meet! Sure many others know that feeling.
But I'll be thinking of all of you...
Anita
Husband Dx 12/02 Stage 4 Tonsil Cancer T1N2bM0; surgery, radiation, chemo 1/03 - 4/03.
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#3688 09-20-2004 11:43 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | I just cannot wait to see those Hokey Pokey pics..
Crazy Bunch that you are! If we hear about the lot of you on the news ...we will just blame it on the Chemo Brain.
Have a blast!
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#3689 09-20-2004 12:18 PM | Joined: Mar 2002 Posts: 102 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2002 Posts: 102 | Hope someone will post pics of all of you having a great time at the convention, for those of us who can't make it. Wish I was gonna be there too, would love to meet all you great people face to face. 
Julie
Wife to Kelly
SSC tonsil Stage IV
July 2000
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#3690 09-20-2004 12:45 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Julie,
The picture you sent of Kelly and yourself looks great. At least we know what you look like. I know you & Kelly will be there in spirit. It's gonna be a funny looking toast when we all raise our glass of water!!!!
Talk about a cheap date!!!
Love Ya, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#3691 09-20-2004 01:22 PM | Joined: Aug 2002 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2002 Posts: 76 | Hi all, Dan and I can't make it either, Dan will be out of town on business in CA, I told him to hop on over to Vegas but he isn't sure when he is even coming home......Danny if I can try to get a digital pic by Tuesday the 21st is it too late?
I will try to get Dan to take one.
Sherrie
Sherrie wife to Dan, Tonsil cancer survivor, Stage IV diagnosed July/2001
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#3692 09-20-2004 04:31 PM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Dress up? Not a chance!! I'm in a suit too often now that my schedule is full of OCF business. it's a jeans and shorts weekend for me!
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#3693 09-20-2004 05:41 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hey I know what a Hawiian shirt looks like.....What does a Vegas shirt look like??? :p
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#3694 09-20-2004 06:14 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Mark, I am bringing my Hawiian shrit. Bought two of them in Florida two years ago.
I second Brians motion, Shorts and jeans.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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