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#3600 09-09-2004 04:34 PM
Joined: Mar 2002
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OCF Founder
Patient Advocate (old timer, 2000 posts)
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OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,918
Likes: 67
Christy....You cannot know how long. No one here, and not even the doctors can give you a fixed point in time. A precision guess is still a guess.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#3601 09-09-2004 04:38 PM
Joined: Aug 2004
Posts: 45
Contributing Member (25+ posts)
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Joined: Aug 2004
Posts: 45
Thank you too Mark.....:-))

I am trying so hard to stay positive.....:-))

All we have to hold onto right now is chemo and radiation.

All I can do is pray and pray and hope someone up there is listening. Maybe if I tell my Grandpa I am not ready for Grandma to leave yet.....maybe he will watch over her and make her all better.....:-))

Christy

#3602 09-10-2004 03:02 AM
Joined: Oct 2002
Posts: 546
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Oct 2002
Posts: 546
Christy,

I feel I must apologize. When I agreed that things didn't sound good, I didn't mean to imply that the situation is hopeless. Chemo and radiation could very well shrink the tumor. For some reason, I thought this was a recurrence. I re-read your posts and saw that she was just diagnosed in August. That changes things somewhat. It is still very serious, but a recurrence would be worse. Since this is new, she should be able to have a full complement of chemo and RAD. There are many survivors here who have had their tumors shrunk down to nothing.

You must keep pressing the doctors to take action NOW! There is no reason for them to not have the biopsy results yet. Call every day and demand it.

Again, I am so sorry for jumping the gun. I should have reviewed your posts before replying instead of assuming this was a recurrence.

Chagrinned, shocked
Rosie


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
#3603 09-10-2004 03:46 AM
Joined: Aug 2004
Posts: 45
Contributing Member (25+ posts)
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Joined: Aug 2004
Posts: 45
Hello Rosie,

No need to apologize....:-)) I still don't think it looks very good, but I have to stay positive and hope for anything that will help.

I have been trying to prepare for the worst. Maybe it is just to help me cope with everything.....I don't know. I wouldn't dare show that in front of Grandma though..:-)) For the most part I have been okay.....I have my moments.

My biggest fear is the cancer has spread to her brain. She has been acting strange the past few days.....I don't know if it is because she is not eating much. In the report it said the intracranial and intra-orbital (I think that has to do with the brain) seems to be normal. Keep in mind.....this test results were from September 30.

Mom said she seen Grandma yesterday and she has a lump growing outside of her lip now.

If they don't treat her soon it will be too late.....

Mom is phoning about the biopsy again today. Cross your fingers it is not pending still.

Christy

P.S. I was going through old posts last night. I am so very sorry to hear about your daughter. I am glad you came back to the forum though. You are too sweet.....thank you for all your posts.

P.S.S. We still don't know.....but this cancer could have been from her breast cancer over 10 years ago.....I think that is another thing they are trying to find out.

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