#3554 09-03-2004 10:50 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Well, remember, at this place no one is speaking any one elses native language, so it took 3 or 4 tries before I got the instructions figured out. Thought it was one of the devices that you suck real hard to see how much air you can draw in. Then I thoght it was suck, then blow, and finally got it right, but took a few tries at that. Well, they sid "inhale, then exhale hard" I thought do both with this contraption in my mouth.
Anyway, went back yesterday, re-did the CRX and took a look at the one from before. Doc says wrong place/charactaristics to be mets, more likely an infection or fibrosis, both of which would be likely at one year out he thinks.
All the other tests came back normal, including all the blood screening for cancer. Will get the results of the last crx on Monday, see what happens then.
And so it goes.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3555 09-04-2004 05:14 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Bob, It sounds like that gadget on the "Right Stuff"!
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#3556 09-05-2004 05:00 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Just got off the phone with the doc on the follow up crx, the position they had me on for this one was kind of like doing the limbo, so they could get a different angle. For some reason the song "Hokey Pokey" kept going through my head, and it was very difficult to keep from laughing.
Anyway, second x-ray came back normal. So who knows what went on with the first one.
Nothing like a good "scare" just to remind you that you're a "survivor" and not "cured"
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3557 09-05-2004 07:24 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Bob
Great news, glad all the PANIC was not needed.. and glad you haven't lost your sense of humour...
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#3558 09-05-2004 11:15 PM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 153 | hey Bob,
let's all do the Hokey Pokey for awhile!
cheers,
larryb | | |
#3559 09-06-2004 11:19 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | A bumper sticker I saw the other day:
"What if the Hokey Pokey really IS what it's all about?"
They sure did the Hokey Pokey with all those damn blood tests. I think half of the people giving me them were trainees from Western Career College.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#3560 09-06-2004 11:35 AM | Joined: Oct 2003 Posts: 89 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 89 | Hey I can't shake my tongue anymore, but I am sure glad I can still shake my leg, hip, and hands!
History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.
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#3561 09-06-2004 01:46 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | I wouldn't think anyone from the East or West coast would have ever heard of the Hokey Pokey. I've heard it at every wedding I've every been at. MidWestern thing I thought.
I know what you mean about the blood draws and infusion of chemo Gary. That damm port they put in Friday better work tomorrow!!!
Danny Boy
Next stop Vegas!!!!
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#3562 09-06-2004 04:04 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Everybody around here roller skated when I was a kid (50's-60's) and they always did the Hokey Pokey at the roller rinks. I DJ and play it from time to time when there are kids in the audience. People still dig it - it's got more staying power then "The Macarena".
I thought I would get used to the blood draws but I hate them worse than ever.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#3563 09-07-2004 05:19 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | And from the other coast, I can't think of a Christams party, retirement party or wedding I've been to where they didn't play the HOKEY POKEY.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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