#3346 08-17-2004 04:00 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All,
First off I wanted to thank everyone who responded to my post several weeks ago about my reoccurance. I received so many emails and private messages of support, It really lifts a guy up to know so many people are praying and pulling for you. Thank You.
I received some good news Monday about the reoccurance in the original surgical bed. The path report from the recent scan of August 6th reads as follows:
" There is noticeable decrease in mass of abnormal enhancing soft tissue in the right tonsillar bed since the previous study" (June 6th) "Findings in the soft palate and left tonsillar bed and parapharyngeal tissue appear unchanged"
I will be continuing with the chemo for the next five months. Having three weeks on followed by one week off. They tell me it can't be cured but it looks like it can be slowed down some. I certainly think all the thoughts and prayers directed my way contributed to my scan results.
"You Gotta Believe"
Thanks Again, Danny Boy!!!
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#3347 08-17-2004 04:25 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Danny Boy!
Good news and thanks for the update! Have been praying for you daily and will keep the prayers coming your way! Can you sneak down to Las Vegas in between chemos??? Keep kicking that beast with everything you've got! Love - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#3348 08-17-2004 05:57 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy,
I am excited to hear your good news! I wil continue to pray for you. See you in Las Vegas!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#3349 08-17-2004 06:01 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Way to go, Dan. I`m away from OCF for 3 months and looks like I`ve missed alot.......I`m glad things are looking better for you........and for all you guys who know me, I`m back and I`m badder than ever....................Love and Hugs, Dee | | |
#3350 08-17-2004 06:14 AM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | If they can stop it , maybe they can shrink it!
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#3351 08-17-2004 06:24 AM | Joined: Feb 2004 Posts: 56 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2004 Posts: 56 | Danny Boy,
What wonderful news!! I'll keep praying for you. I can't stop smiling after I read your post.
VickieM | | |
#3352 08-17-2004 06:30 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Dan,
It's great to hear this good news! I hope and pray that the rest of your treatment will be way more successful than your doctors expect.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#3353 08-17-2004 07:24 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Danny,
So great to hear that news. Praise God! I have been lifting you up daily that the chemo will shrink those tumors into nothingness...looks like that's where they are headed! That is such great news...I know your family is as thrilled as we are! You take care and know that you are loved and thought of daily!
Deb
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#3354 08-17-2004 10:51 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Danny Boy! I just read your post and shared it with my husband - - you have been in our prayers each day, and we are moved to tears to read the good news. We won't stop praying for better news to come.
Thank you for letting us rejoice with you!
Nicki and Tom
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#3355 08-17-2004 11:08 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Danny, That is terrific news. Hang in there and I hope the next round shrinks it even more and doesn't make you too sick. We're all pulling for you.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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