#3216 08-07-2004 09:39 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi all
Finally they had given me a date of the 11 of August and they have promised not to move it again (case of third time lucky) They are talking a stay of 10 to 14 days in hospital, (partial glossectomy and removal of some tonsil area, taking a flap from my forearm) so say a few prayers for me Tuesday Night not sure of the time difference... Thanks for all the help and encouragement from you all over the last few months... I couldn't have done it by myself..
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#3217 08-07-2004 11:30 AM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hi Helen,
Glad to hear that you have a firm date although I don't wish you having to go through surgery (hope that sounded right?). I had a total glossectomy, right / left neck dissection and muscle flap taken from my abdomen. I spent 14 fun-filled days at Mt. Sinai as my hospital "hotel" of choice (yeah, right!). I know that with your spirit and strength that you've provided everyone here that you'll do just fine. I'll keep you in my prayers as always and will be thinking about you on the 11th. Please keep us posted on how you're making out. I guess the message board will be a little quieter while you're recovering and I'll miss reading your posts.
Sunshine, love and hugs back at ya!
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#3218 08-07-2004 12:19 PM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Helen -
Bring EAR PLUGS and shower slippers!
The roommate ALWAYS snores.
As for the slippers, I forgot my first time and wore those non-skid socks they give you into the shower. No way I was going in with bare feet!!!
Good luck - we're praying for you!!!
Sabrina | | |
#3219 08-07-2004 12:26 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Hi Helen
Also glad to hear you're finally getting the date to get this done. Not sure why the long wait, a UK thing? The thing that will be tough is forcing yourself to keep the mouth moving after surgery. Doc's amost forced me to eat semi solid foods such as yougurt, jello, soup and such the day after partial glossectomy.
I'm sure you will do ok, will be thinking about you and hoping you do well. Let us know how things go as soon as possible.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3220 08-07-2004 12:53 PM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Dear Helen,
I'll be pulling for you here in Virginia!
You've been a great help to me for the last several months. Now, lets see if I can put my bossy head on and tell you (with my finger wagging) that you better darn well take some of your own advice and keep yourself out of any sort of bad frame of mind. Sure, it's crappy to have to go through this surgery...wish you didn't have to!!! But you'll get rid of some bad cells and maybe some bad juju in the process. I have no doubt that you'll keep those doctors and nurses on their toes with your wicked sense of humor and lovely streak of orneriness. You're in my thoughts and prayers, girl!
Love,
Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#3221 08-07-2004 02:20 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Helen,
I'll be thinking of you and hoping for a quick recovery. Certainly the surgery is nothing to look forward to, but we all want the results to be the best for you.
Bob -- your post reminded me of the first "meal" that showed up after I got to my room after surgery. Apparently the kitchen didn't have a clue about why I was there and they sent an overdone, hospital-quality steak. I just stared helplessly at the nurse, pointed to all the stitches in my mouth and neck, and waited for her to bring back some broth.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#3222 08-07-2004 03:53 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Well, FINALLY! Sunshine to you, Helen along with love and best wishes.......
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#3223 08-08-2004 04:59 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Helen, Will pray for you even more on the 11th and 12.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#3224 08-08-2004 04:59 AM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Hello Helen, I will also be thinking of you and praying for the very very best. I just had this done in Feb of this year. I was in the hospital for 17 days then rehab for another 3 weeks. I will pray for you my dear. Always, Vicki Lynn | | |
#3225 08-08-2004 07:21 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Thanks everyone for all your best wishes..
Have packed LOUD cd's, rubber flip flops, a laptop and HID the red wine at the bottom of my bag...
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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