#3125 07-26-2004 05:34 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Oct 2002 Posts: 546 | Hi all, I just wanted to give a gentle reminder, or maybe a slight nudge, to everyone about donations. For those who are financially able, making a donation to OCF would be a fitting tribute to those we have lost. I have just made a donation to OCF in memory of Lynn Furlich. I plan on doing this for every member we lose. Hopefully, the disease will be eradicated before I am bankrupt!!! But, seriously, this site needs our financial support. Can you think of any better organization to donate to? I can't. The American Cancer Society and many others are good, but they also receive the big bucks and tons of media coverage. I personally was helped much more by this site than any other. And I researched exhaustively for months, so I've hit plenty of websites. I found most of them, including the ACS site, to be sorely lacking. OCF is simply the BEST of the best!!! Brian has devoted his life to helping others and he deserves our support. Rainbows & hugs, Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#3126 07-26-2004 06:14 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2004 Posts: 218 | Rosie,
Wehn did Lynn pass away? I have been on vacation and such and did not see any posts about that.
She was a light for me. She sent me private e-mails with pep talks etc. She was also on Iressa as I was/am and we shared many stories about the drug and it's side effects.
I am truly sad. This is the first person I have lost on this site.
Praying and hoping, Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04. 41 Years Old At Diagnosis
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#3127 07-26-2004 10:31 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Oct 2002 Posts: 546 | Robert,
She passed away last Friday, July 23rd. Ed (Uptown) posted the news. It is titled "very sad news" and is on the general board about 4 or 5 posts below this one.
Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#3128 07-27-2004 04:30 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | I know what you mean Rosie, My friend Peggy Radtke died of Oral cancer last Tuesday, July 20th. I loved her dearly and she suffered much more than I thought she had to. When I read the obit and at the end they asked for donations to the American Cancer socity. My blood pressure went up until I sent my donation to the OCF in Peggy's name. Why doesn't anyone know about us? It pisses me off that the funding we recieve comes from people least likely to be able to afford it. It shows the class of the Oral Cancer foundation members. Brian has created a forum for us. We are a tight group of family members. Looking forward to meeting you in Vegas! Best wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#3129 07-28-2004 06:08 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy and Rosie,
You bring up such a good point and I have been mulling over in my mind whether to broach the subject with Lynn's husband. He did ask me to let everyone know the news (unfortunately, after I had already posted) and he mentioned how much the site meant to her but do you think it is too pushy to suggest donations to OCF in her honor? It would really be cool to show the JK PSA at her service. I was planning on asking him if he would like to come to Las Vegas and also if he would like to provide a family picture for Las Vegas. I don't mind being pushy to get the word out, but I don't want to be offensive. I know Lynn would be smiling down knowing we were all doting over her.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#3130 07-28-2004 11:10 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I don't know if I would show the PSA at her service but people request donations to charities and causes of all kinds, all the time, in the obits.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#3131 07-28-2004 11:29 AM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 67 | Ironically, the time that OCF gets the most donations, is when someone asks for donations to be sent in lieu of flowers at a funeral. I hate to get money this way, but it brings awareness of OCF, the disease, and in the bigger picture, helps us stay financilly alive out here and hopefully doing some good. Flowers fad and die a few days after the service . Thedonation goes on and on and on in what OCF does.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#3132 07-28-2004 05:01 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2002 Posts: 541 | I too hate to make donation to OCF in memory of a member we miss. Still I am ready to do this another time in honour of Lynn. Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#3133 07-30-2004 10:31 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Oct 2002 Posts: 546 | Ed,
I'm sorry I didn't see your question earlier. I haven't been on the site for a couple days. I hope you did ask Lynn's husband about requesting donations to OCF. I don't think it would be pushy at all. I'm sure he knew how much this website meant to her.
Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#3134 07-30-2004 08:28 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I noticed in the obituary that the family requested donations in leui of flowers but requested they be sent to the cancer support group of their church. I will see him at the funeral services but still don't know how to bring up the subject. I get the impression that he does not know much about the site. I am planning on getting all of her posts and private messages to me, compiling them as a diary in chronological order and presenting the collection to Lynn's husband and daughters so they can know the gift she provided to many of us here. I hope the girls can look back years from now and understand how their mother found a way to give back so much as she battled this disease.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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