#29542 12-03-2007 03:37 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Derek - so glad that things went so well for you and that you are a little calmer about everything. It does help to take action and be doing something so that you can feel more in control of what's happening. Good for you!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#29543 12-04-2007 07:21 AM | Joined: Sep 2007 Posts: 37 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2007 Posts: 37 | ha small world cookey eh, im not from Killie, im from Stevenston which is only afew towns away though, next to sunny saltcoats by the sea on the west coast, couldnt believe it when i seen your post, i used to be a ballboy for kilmarnock football club for years in my early teens though !!
im still feeling a bit better today though which is good, face is pretty sore but hopefully wont last too long, was back in at kilmarnock today doing some shopping for bits and pieces i seen yesterday and some more christmas goodies for my daughter.
one thing that is bugging the life out me though is the fact that the pain when swallowing is back.
this is what prompted me into getting the white patches checked out again 4 years down the line, i was scared the pain on swallowing ( only 1 side of the throat, same side as the majority of the white patches ) was related to the white patch in the floor of my mouth ??
it seemed to dissapear with the antibiotics first time about 9 weeks ago, then it seemed to return again, though i wasnt sure whether it really was or if my mind was working overtime, but i think today with my calmer state i can safely say the pain on swallowing is back, though maybe it has something to do with the 2 biopsys on the same side of face ?? i dont know and its bugging me.i think i explained it wrong to the consultant yesterday, im sure i said sore throat rather than pain swallowing.
will just need to wait and see the outcome of the results and if all is o.k in mouth, then i will have to follow up the throat situation, will need to push for an appointment to the ENT department.
also if it was invasive scc would i not have more profound symptoms in the space of 1 and a half to 2 years ??
hope someone can maybe help a bit hope everyone is o.k today also.
thanks all
Derek | | |
#29544 12-04-2007 10:06 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Hi Derek .
I love Saltcoats,used to go to the beach there and Largs when i was a liitle girl. I would tend to agree about the time line thing ,but sweetie my advice would be don't try to second guess,just try to be calm and patient.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#29545 12-04-2007 10:30 AM | Joined: Sep 2007 Posts: 37 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2007 Posts: 37 | thats great cookey, saltcoats used to be a bit of a beach hot spot eh, largs is a nice wee town also, like to take my daughter up to largs , only half an hour on the train, nice shore front walk. though im not sure so many people go swimming in the sea up here just as often !!
yeah i know i shouldnt be second guessing though and will need to be paitent and hang on in there, though as i say im much calmer than ive been at any point in the last 4 months just now, i took some heart from the comments of the hospital staff and the fact that finding out that the last time it was only an irritation.
thanks for the reply, and i will send you a postcard from largs the next time i go with my wee girl , ha | | |
#29546 12-04-2007 10:46 AM | Joined: Sep 2007 Posts: 37 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2007 Posts: 37 | do any of yous members mind if i dropped you a private message if i ever feel the need ?
thanks
Derek | | |
#29547 12-04-2007 11:29 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | feel free e-mail address is in profile as well
xxx liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#29548 12-05-2007 07:25 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Derek, I don't want to scare you but a sore throat when you swallow is what I had when I was diagnosed the second time round. If it is not clearing up with antibiotics, I would get to an ENT ASAP to get scoped and a CT or PET scan. Please have this checked out by someone who specializes in H&N cancers.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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