#29240 07-27-2007 01:24 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | My Biospy results are are in and I need help understanding ! 1st thing is iT WASN"T CANCER it was a bening Squamous mucosa , and it was suggestive of a Viral/verrucous type lesion. That is good news I am thinkin.....But left un treated am I understanding that it could turn to cancer...AND from what I am readinng "Wechsler and Fisher15 emphasized the locally aggressive but clinically benign nature of the disease by using the term oral florid papillomatosis. the apparent clinical benignity may result in lengthy periods of misdiagnosis, during which it is not likely to spread to distant lymph nodes. Instead, oral VC is more likely to destroy the nose or the mandible as it slowly but relentlessly extends into the underlying tissue, following what appears to be the path of least resistance that often causes it to develop around regional lymph nodes and not directly involve them. " SOoo should I show concern and what other things should I know about ..I mean it is def better then SCC ..still sounds as though it could cause some problems. ANd could this have been whay caused my first problem and is it highly recurring ?
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#29241 07-30-2007 03:50 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Hey Sharlee If you seaerch back to 3-14-07, read my "first" benign biospsy. It contains similar words. I just found hospice computor, so I'm 24/7. They want to stablize my meds and get me home to ride out the storm. I will be writing again. All is settling down. Just tying up loose ends and goodbyes. I am at peace with myself and family, and I am grateful I have time for this. I am being well cared for. I will soon see what lies beyond the blue horizon.I pray it's a beautiful day. I will log in later and update. Keep fighting everyone. It ain't over till it's over, and over just may be another beautiful day. Prayers and best wishes. Petey PS: Don't panic, I have a few smiles to pass around yet.
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#29242 07-30-2007 03:56 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Petey, what is going on? Are you not getting radiation? Please keep us informed, this post of yours concerns me.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#29243 07-30-2007 04:28 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Sharlee, sorry didnt mean to derail your topic. I wish I could answer your questions about your biopsy results--all I can say is hooray it isn't cancer!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#29244 07-30-2007 05:21 PM | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | Sharlee,
I wish I understood your post above, but am glad it's not cancer. How does your doctor want to treat what you described above, did he give you any suggestions? Margaret ---------- C/G: Husband, 48 (at time of dx) Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3) Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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#29245 07-31-2007 03:22 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Well I guess we are considering it treated , because he removed it. i don't know how comfortable I am ..def on edge ... Not obsessing to much though ( LOL ) I mean in general if you saw me you wouldnt think anything was wrong...But I can tell you guys I still havent slept in days but more then a oouple of hours here and there.
Dr says we are going to watch and be vigalnat ...that is important to me. That he is supportive and dosent find me obssesive and crazy and we keep in contact through email as well as by phone ..so I find comfort in feeling as though he is truley there for me and looking out and has a genuine concern.
I have a lesion still where biopsy was done so I am nervous and not at all sure if that is normal and I dont want to be to Obsessive so trying to wait it out ..My biopsy was 2 weeks ago this coming thurs ..any ideas ?
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#29246 07-31-2007 05:13 PM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 583 | Sharlee,
I am really confused? So it is not cancer Yet? Dr. will monitor how often? I hope no less than 3 months. Have a scan done also.
I hope all is going to be OK for you. Take care, Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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