#29177 07-11-2007 02:53 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Petey
You and I have become friends and You have helped me through and the understanding (somewhat) about the alcohol. How can you even think about giving up ? You have fought so hard to get the treatment you deserve. Ya it sux ....Everything does at one time or another! And families have their issues ..But they are family and they are going to stand by you and help you through .
You have been given another chance SO RUN WITH IT ! Until that Dr says there is nothing more we can do ..you would be a hypocrit to lay down and do nothing ! I dont feel sorry for you .. I feel bad that you have more nodes that are affected, but not over everything else, cus YOU CAN FIX that . You tell me how to do it ! AND YOU HAVE THE BLUE OCEAN !!! I don't have that !! ( I am jealous !!)
This whole thing SUX ..we all agree . I know have a tumor in my trimegnal Nerve which is paralysising my face and my left side and IT SUX !! and it is from the surgery related to my cancer ..but I DEAl I have bad days but i move on ..For my kids ...SURE ... BUT also for ME ! I am so young and so much to do and so are you !!
So go for that drive to that ocean ..find the peace and pull yourself togther !! ANything worth having isnt easy ! I LOVE YA LOTS AND LOTS Petey !!! I couldnt have done alot of this without you and you humor and I am sure alot of people feel the same .....SO SNAP TO IT !!
Shar
Ps
Read Davids post about one year ago today was his 1st Rad treatment....There is some inspriration for YOU !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#29178 07-11-2007 05:19 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Petey, don't know what to say to you because my husband fought like hell for the 2 years he battled this disease because he really wanted to win-he did not win, but maybe you can. Amy in the Oz
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#29179 07-12-2007 01:55 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Petey, please check in.....want to hear from you, Carol aka crab cakes
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#29180 07-12-2007 08:42 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Petey has "checked in" at the "General Board" Global Medical Center on 7-13-07 at 12:23 AM.
In lew of sending you all flowers his latest request was to read this message and then visit him at the "General Board".
What is a friend? I will tell you it is someone with whom you dare to be yourself.
Truly great friends are hard to find, difficult to leave, and impossible to forget.
A friend is one who knows us, but loves us anyway.
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#29181 07-13-2007 02:20 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Nice to hear your "voice," Petey. I'll go to the General Board to hear more. And, as usual, you leave us with lovely thoughts. Hang in there, buddy!
XO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#29182 07-18-2007 08:11 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Petey,
The "boost" is usually applied at the end of the radiation treatment protocol.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#29183 07-19-2007 02:45 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hey Petey,
Just wanted to let you that I shared the posts from above with mom tonight...she cryed-a lot- when she read that you said you wanted to die. She asked me to get on and tell you not to give up hope. You scared her. Remember, other people have so much faith in you. You gave her so much help when you called that one day. You asked for the wrong gift on your b-day--you should have asked for more faith.
I hope you are feeling better. This beast is nasty and sly...never know what's gonna hit you next.
Happy belated birthday to you. keep strong.
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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