#27865 10-31-2005 08:00 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Thanks everyone. My medical team and I have agreed that the phase-II study I spoke of in my earlier post is the best option for me. The plan calls for me to get started Wednesday. Yeehaaa -- back in the fight. So long naturally curly brown hair.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
| | |
#27866 10-31-2005 08:14 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Good news Brett....keep looking up!!! You are in my thoughts and prayers....Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#27867 10-31-2005 05:22 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Brett,
I think you made a good decision for your case. The quality of life issues would have kept me from that treatment. How can they be so sure that the odds were so low for the surgery. Usually they can't give you a definate percentage or much of a time frame.
I am hoping your decision was the correct one and that you receive the intended results. Please take comfort in knowing I and many members will be pulling for you.
Please keep us posted as you start yet another journey. Try and think positive and vent here anytime.
All My Best, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
| | |
#27868 11-01-2005 05:23 AM | Joined: Apr 2003 Posts: 122 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2003 Posts: 122 | Brett,
I really admire your courage, tenacity and good attitude regarding your recurrence and initial poor prognosis. I'm going through a recurrence myself and I tell ya, the attitude is the first thing to go.
Keep doing what you know is the right thing-researching, taking an active part in your treatment, and allowing these wonderful folks in this forum to share their own personal experiences they may be sharing the best possible thing for you-for ALL of us-HOPE.
God bless you and keep on posting, buddy!
gordon
SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!
| | |
#27869 11-01-2005 04:07 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | Brett, I just wanted to add my words of encouragement and support... Congrats on pushing for more options...I think the fact that there is so much contradictory atitudes, pronostications, and treatment plans from differing doctors adds to our inability to make sound decisions... Good luck with the Tarceva, maybe you'll be paving the path for more of us in the future  Keep your chin up!!!
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
| | |
#27870 11-02-2005 02:21 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | Latest update on Tarceva:
WEDNESDAY NOVEMBER 02, 2005 Tarceva Gets FDA Okay for Pancreatic Cancer
SOUTH SAN FRANCISCO, Nov. 2 The FDA approved Tarceva (erlotinib) today as an oral therapy for advanced pancreatic cancer in combination with Gemzar (gemcitabine) chemotherapy, Genentech and OSI Pharmaceuticals announced.
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
| | |
| Forums23 Topics18,245 Posts197,129 Members13,317 | | Most Online1,788
Jan 23rd, 2025 | | |
|
